It wasn't long before other families reached out to join us , all experiencing the same challenges, with very sick children and no support. (1000 children 31/01/2021)
Our advocacy group supports parents & carers of children with Long Covid & fights to be their voice.
Our volunteers work tirelessly on the 3 aims of our manifesto.
Raise awareness that children transmit Coronavirus, can get both Covid-19, and Long Covid regardless of the severity of symptoms at initial presentation.
Support the medical community in understanding Long Covid in children and ensure that children included in the developing narrative.
Ensure schools provide a safe space for all children: including adequate ventilation that prevents airborne transmission, and considers the long term health and wellbeing of children & staff, alongside their educational needs.
We do all this because we do not want other families to share our story and believe parents have a right to make an informed choice for the wellbeing of their child.
In November we launched a website to signpost people to resources and provide an information hub. We run social media accounts to reach more families, network with agencies that may be able to support the families and campaign for research.
Funds raised will help us update our website, continue to provide support & become a hub of essential resources for countries around the world.
In time we hope to connect with existing services so that we can provide support mental health support for parents
In the future, we would love to be in a position to run a bursary to support parents who are unable to purchase supplements or essentials during their child's recovery.
The volunteers running Long Covid Kids have Long Covid too, and have been covering the costs themselves, but are unable to do that forever.
At the moment there isn't any other support for parents with Long Covid.
Please support us so that we can continue to support families with the disabling symptoms of Long Covid.
To see more about the children involved, please click the links.
- Lucy Chennells
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