What I'm raising money for:
My best friend Brenda, has had a tremendous journey over the past 4 years. Her sweet son Logan, was diagnosed at 2 years old (now 6) with:
MLD Metachromatic Leukodystrophy (MLD) is a rare, genetic, degenerative, neurometabolic disorder that affects approximately one in 40,000 people (primarily children) worldwide. It is an inherited disease, but parents are typically not affected. At present, it is a disease for which there is no cure.
He has since, endured rapid decline. He is ketotonic, and has been on hospice for 4 years.
His final days are approaching, his kidneys shut down, it's is expected that he will pass in the next few days.
Brenda , who also has a healthy, smart 9 year old daughter, hasn't been able to carry on any normal life, having to care for Logan, with limited respite care. She has financially struggled and fears she will not be able to have a memorial to honor Logan's legacy.
How the money will be used:
Memorial and funeral exspenses
Why this is important to me:
She is my best friend, and is going through something no parent should ever ever have to.
- April Love
- Jennifer Jenkins (Porter's Pearls)
- Jayne Ronfeldt
- Cathy Murphy
- Jessica Thieman
Organizer and beneficiary
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