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Maggie's ALS Medical Fund
Last year, Margaret was diagnosed with ALS, a rare neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Instead of quoting technical medical jargon about how it affects motor neurons between the brain, the spinal cord and the muscles throughout the body I'd rather just state that nothing can be worse! Her brain is as sharp and clear as it ever was yet her body is rapidly failing her. She's confined to a wheel chair and can no longer use her hands to perform simple tasks like feeding herself, scratching an itch, or blowing her nose. She can no longer stand and requires assistance to transfer to the toilet or to the shower. She'll soon need a hydraulic lift to perform these transfers. With voluntary muscle action progressively affected, in the later stages of the disease she will become totally paralyzed. She'll need a respirator to allow her to breathe and since she can no longer swallow, nutrition must be provided through a feeding tube.
We are appealing for financial assistance to help out with Margaret’s rapidly growing medical expenses, much of which is not covered by insurance. The family has spent large sums to convert her bathroom and bedroom. Since she can no longer speak, she uses a Dynovox computer which tracks her eyes to spell words/ phrases and to express her wishes and her emotions. That is her only means of communicating to her husband, her two children, and her caring extended family. She'll soon need around the clock care, including a live-in nurse.
Her immediate needs include:
Around the clock live-in Nurse
Hydraulic Hoyer Lift to perform the transfers
Leg boots/braces
Head and neck brace for wheelchair
Transportation to and from medical facilities
The ALS Organization is a wonderful resource for information, care giver support and research for treatments and hopefully one day finding a cure. Donations made to the ALS Organization are always appreciated but those funds do not directly aid in Margaret's care. Any financial support you can provide will go to a very worthy cause, making Margaret as comfortable as she deserves to be. We so very much appreciate and welcome your prayers. We sincerely thank you from the bottom of our hearts.
The Siegel and Lenihan Families
Last year, Margaret was diagnosed with ALS, a rare neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Instead of quoting technical medical jargon about how it affects motor neurons between the brain, the spinal cord and the muscles throughout the body I'd rather just state that nothing can be worse! Her brain is as sharp and clear as it ever was yet her body is rapidly failing her. She's confined to a wheel chair and can no longer use her hands to perform simple tasks like feeding herself, scratching an itch, or blowing her nose. She can no longer stand and requires assistance to transfer to the toilet or to the shower. She'll soon need a hydraulic lift to perform these transfers. With voluntary muscle action progressively affected, in the later stages of the disease she will become totally paralyzed. She'll need a respirator to allow her to breathe and since she can no longer swallow, nutrition must be provided through a feeding tube.
We are appealing for financial assistance to help out with Margaret’s rapidly growing medical expenses, much of which is not covered by insurance. The family has spent large sums to convert her bathroom and bedroom. Since she can no longer speak, she uses a Dynovox computer which tracks her eyes to spell words/ phrases and to express her wishes and her emotions. That is her only means of communicating to her husband, her two children, and her caring extended family. She'll soon need around the clock care, including a live-in nurse.
Her immediate needs include:
Around the clock live-in Nurse
Hydraulic Hoyer Lift to perform the transfers
Leg boots/braces
Head and neck brace for wheelchair
Transportation to and from medical facilities
The ALS Organization is a wonderful resource for information, care giver support and research for treatments and hopefully one day finding a cure. Donations made to the ALS Organization are always appreciated but those funds do not directly aid in Margaret's care. Any financial support you can provide will go to a very worthy cause, making Margaret as comfortable as she deserves to be. We so very much appreciate and welcome your prayers. We sincerely thank you from the bottom of our hearts.
The Siegel and Lenihan Families