
Removing Lizzie's Brain Tumor
Donation protected
My 26 year-old daughter, Lizzie, recently had a partially malignant brain tumor (specifically an Oligodendriglioma) removed from the right frontal lobe of her brain. Because the surgeon supermarginally cut part of her vital brain tissue in order to remove the entire tumor, she was left with weakness and lack of mobility on the left side of her body. Lizzie is a full-time grauate student at NYU studying fine arts and business and lives in NYC in a fifth-floor walk up. She is therefore is used to being very mobile and actively moving around the city via walking and the subway. To be able to transition back to the city, she is doing PT an OT at Gaylord Hospital in Wallingford, CT. I was with her for a week after the surgery, helping her move around her room to use the restroom and cut her food, but I can no longer afford to stay in a hotel and rent a car. I also have two dogs at home that need to be put in a kennel. She still needs a bit of help moving around because her balance is still off, so I would like to go back up to CT for at least another week.
Below is a breakdown of the costs we are facing
Medical (her insurance covers only 80% of medical costs)
Surgery co-payment $4,500
co-payment for MRI scans with contrast every 3 months -
oral chemo treatment (Tremodar) - $3,000
In home nursing visits
In patient and out patient therapy (OT, PT and Speech) for 6 weeks
hotel in Wallingford (Fairmont Inn) - $130/night
car rental - $35/day
Kennel for dogs
gas to drive lizzie to/from outpatient therapy every day- $20/day
Meals $30
ubers and taxis to help get around the city until she can walk properly on her own and go up and down the subway stairs - $80/week (4-6 weeks)
groceries and pre-made meals delivered - $100/week (4 weeks)
Below is a breakdown of the costs we are facing
Medical (her insurance covers only 80% of medical costs)
Surgery co-payment $4,500
co-payment for MRI scans with contrast every 3 months -
oral chemo treatment (Tremodar) - $3,000
In home nursing visits
In patient and out patient therapy (OT, PT and Speech) for 6 weeks
hotel in Wallingford (Fairmont Inn) - $130/night
car rental - $35/day
Kennel for dogs
gas to drive lizzie to/from outpatient therapy every day- $20/day
Meals $30
ubers and taxis to help get around the city until she can walk properly on her own and go up and down the subway stairs - $80/week (4-6 weeks)
groceries and pre-made meals delivered - $100/week (4 weeks)
Organizer
Rebecca Chatham
Organizer
Dallas, TX