
I’ve sadly had a very rare Guillain-Barre relapse.
Donation protected
Hello everyone. This couldn’t be more shocking to myself or to my medical team but my Guillain-Barre has relapsed. All of your generosity saved me the last (and I thought only time I would need help). The relapse rate is so infinitesimal my who medical team awning with myself is in disbelief. I’ve been in Mt.Sinai since Saturday and was moved to acute Neurologly last night and had and episode this morning that had me almost moved from Stepdown ICU to acute ICU. For the moment I’m stabilized, fingers crossed I don’t have another scare as I did this morning. They have me on IGT right now which is the initial therapy for attempting to treat GBS. Unfortunately it is not proving to be as successful as they had hoped, I caught it much earlier this time around but it is also moving quite rapidly up into my body. I am being folllowed by the OC Neurologist this weekend and everyone is hoping the IGT takes. If it doesn’t I will have a mainline placed on Tuesday to start plasmapheresis. It is embarrassing beyond any words to have to reach out to the community again but unfortunately I missed the season at Smiths and came back to Spring Break followed by the down turn of the season. As some, if not most know, I love my home that Molly and I share and the thought of loosing it and not being able to live is embarrassing/heartbreaking/debilitating. If I had any other resources than the community I would not put my pride aside and ask you all to help me get through this very rare disease again.
It is very humbling to know I have the support I do. It does make me realize that my genuine care for all of you as my guests and friends come through which gives me a sense of pride in that I do what I love with passion.
All I want to do is get out of this hospital bed and back to seeing all of you very soon. Thank you for all of your support of myself and Smiths…I’m at Mt. Siani on Miami Beach and welcome any and all visitors if anyone is interested in coming to see me.
Again I can not thank the community enough for truly saving me in this very unexpected set back. I will miss everyone until I see you again.
Organizer
Megan Gray
Organizer
Miami Beach, FL