Little Lee's drug cure & equipment

Little Lee has Kleefstra syndrome. A rare genetic condition in which a tiny piece is missing from near the end of one of the body's 46 chromosomes, resulting in multiple intellectual and physical issues. Lee can only eat pureed foods, he cannot sit on a chair independently and he cannot walk. Like most children with Kleefstra he does not talk, many do not talk at all, ever. Little Lee also has a blood disorder where his blood does not clot properly, putting him at high risk of bleeding and bruising, this is lifelong and he will not be able to do things growing up as other children can. He needs a safespace bed to protect him when sleeping, and should he develop Epilepsy like alot of the other children then he will be safer because it is padded and soft. Lee will never be able to live independently so I want to use his appeal to be able to raise money in a trust fund for him for when he is older to help with his growing care and needs. Also I want to use his appeal to raise funds which is going towards www.genespark.org where they are backed by the scientists to help get a drug cure. My little Lee may never be able to tell me he loves me...if we can save another family from going through what we are our goal will be achieved. Please help support little Lee and help find a drug cure. Together we can change the future.
Please donate here or at www.littleleeappeal.org
For more information on Kleefstra please go to www.kleefstrasyndrome.org
For more information on the drug cure please go to www.genespark.org