- K
We found out Layla had a double collecting system on one of her kidneys during my 20 week ultrasound . We monitored it throughout the remainder of my pregnancy and was told we should probably look into a kidney specialist for layla to see once she was born because this diagnosis could cause infections that could be life threatening to an infant.
In hopes to prevent Layla getting an infection we had an appointment Friday 12/13, with the urology department at Valley Children's Hospital in Madera to look further into her situation. Before she made it to this appointment she ended up in the hospital because of an infection. We had been going to a lactation specialist each week and she seemed concern that Layla was dropping weight. She then contacted my pediatrician and told them to see Layla ASAP. They had me come in the next day and also seemed concerned with her low weight. I had asked over and over if it could be due to her kidney issues and they didn’t have reason to believe it was related. I was given a plan to help improve Layla’s weight over the next 4 days and when we went back to the pediatrician she had continually lost an ounce a day. She wasn’t keeping food down and stopped wanting to eat all together. Even the day we went into the hospital her ped. still didn’t think it was related to her kidneys (I kept asking) because she wasn’t showing the typical signs of infection.
We ended up in the hospital on 11/9 and there I watched my baby fight for her life.
That first night was crucial and although her breathing patterns were dire and it appeared she would stop altogether, her heart beat stayed strong and she pushed through. I didn’t see my babies eyes open for 12 hours, she was exhausted. She remained on an iv for the next 5 days with a feeding tube. She regained her strength and started to improve way faster than the medical staff had anticipated given her health upon arrival. (She had an endless amount of people praying for her and it showed)
Basically with the double collecting system, it acts somewhat like a backflow device. Instead of her body fluids traveling through the kidney and out, discharge can get stuck in the additional tube, grow bacteria, and then get pushed back up into the kidney, therefore causing infection. In an infant this can be life threatening, as we already experienced.
We went to Valley Children's Hospital Tuesday 12/2 for a series of tests and to establish a Treatment Plan for Layla.
She’ll require surgery at 2 months old that could then possibly cause another problem that will then require surgery when she’s a year and a half, the possibility of this is 99%. This surgery could be a reconstructive surgery but we’ll know more after the first surgery.
It looks like she’ll be able to keep her kidney. The way her ureters are now is like she has 3 kidneys. The double collecting side that has the 2 ureters acts like 2 separate kidneys. They don't think the top part (with the irregular uereter connection) will be active since it's not right now but they believe the bottom part will be able to do the job well enough to not have to remove the kidney entirely. The top part was just never allowed the chance to develop since its been blocked her entire life.
This first surgery will unblock it to give it a chance.
They still believe the right kidney will remedy itself out and they don't have any need for concern regarding that one.
We appreciate all the prayers, love, encouragement and support that have gone out to us through this ordeal.
We set up this fund not because we expect anything but many of you have asked if there’s anything you could do. This is what would take a little bit of the stress away. Even $5 is appreciated.
What ever the Lord puts on your heart to do. And again thank you all for your prayers. Who knows how many lives this little life might touch.
Blessings to you all 




