As many of you may know, in May 2023 Nevaeh was rushed into hospital quite poorly. The 6 months prior to this her mum, Alex, was back and forth to the GP with her as she consistently had fevers and caught everything going. These were always met with the same response, and that it was normal for a child of her age to catch colds frequently, especially with an older sibling in school. Following a cat scratch Nevaeh then became very unwell, very quickly, and was rushed to hospital with query sepsis. On arrival at hospital she was started on IV antibiotics to fight off whatever infection she had, however following further investigation it became apparent she had an audible heart murmur. This led to a battery of tests and a diagnosis of Infective Endocarditis, something so rarely seen in children of her age that have had no previous operations or any congenital heart defect, which meant by the time she received a diagnosis her mitral valve had already been significantly damaged. She spent four months in hospital with a PICC line to fight the infection and things were touch and go at many points, they had to change antibiotics frequently as she would go into anaphylaxis with little warning, meanwhile her wonderful big sister stayed with family whilst her mummy stayed in hospital with Nevaeh. Once she had finally fought off the infection in her heart, she was discharged, with mum continuing PICC meds at home. Since then there have barely been a few weeks between Nevaeh being rushed to hospital for some reason or other, she catches everything going and even a simple cold puts such a strain on her heart that her liver and kidneys start to struggle, often resulting in yet another hospital visit/stay. She is on medication 3x a day to keep her BP lower to try and relieve any strain on her heart as along with the valve damage she has four separate holes. There have been many questions around whether or not she has a rare genetic condition/auto immune disorder, however given the current climate and constraints around the NHS appointments are often quite spaced out and it has been difficult to get answers as to what the underlying reason for all these things is. I know myself how difficult it has been to sit by watching this happen and being unable to do much in way of support, and as Nevaeh grows she wants to play like all her peers, but cannot. As such and following conversations with her family, I have set up this go fund me, so the many other people who no doubt have felt similar to me and at a loss can show their support in some way. And to hopefully enable them to go for some private treatment/testing, get some answers faster and get Nevaeh the right care so she can be the busy little girl she so desperately wants to be. She will inevitably need operations when she is bigger, but hopefully with funding we can help her in the meantime and potentially access other treatment plans not available to her on the NHS. It would also be nice to be able to treat her and her incredibly brave big sister, both have been through a lot in their little lives. If you can give anything at all to help us achieve this please do, no matter the donation it will all be a step towards a brighter future for her. All those who have had the pleasure of meeting this bright, beautiful, fiery little soul can attest to how truly special she is, and hopefully we can show her parents and sister how much we all love her too