Little Kyren's Heart Needs Your Help

  • G
16 donors
0% complete

$1,865 raised of $5K

Little Kyren's Heart Needs Your Help

Donation protected
On april 11th , Kyren was put on a ventilator and airlifted to OU children's hospital. That morning he was fine and we were told that he was just having a little trouble weaning off oxygen. A couple hours after we were told this, the nurses had told us to try not to touch him a lot because he doesn't respond to touch well and his oxygen drops when being touched and handled. and just an hour or two after we were told that, we got the worst news.. we went down to the NICU to see him and spend some time with him and instead was met with a nurse saying that the doctor is with him right now and we would need to wait to talk to him. The doctors sat us down and explained to us that usually by the 24-48 hour mark, babies are almost or completely weaned off of oxygen breathing room air. Well, he was not. he told us that when that happens and they see babies struggling a little more, that its usually something to do with their lungs or their heart. He did an X-ray, they didn’t see anything wrong with his lungs, so that left his heart. They did an echo on his heart and found that he has a small VSD (Ventricular Septal Defect) which is a hole in his heart, a ASD (Arterial Septal Defect) , as well as something called TGA ( Transposition of the Great Arteries) which he explained to us were two arteries in his heart that were supposed to be crossed, that were straight instead. in this instance, the VSD isn't a problem, its actually helping him ; its the TGA they are concerned about. so thats when he told us they need to airlift him to OKC children's hospital immediately so they can do a procedure called a heart cath to open up the VSD and help mix the oxygenated blood with the non oxygenated blood to help him breathe better, to gain weight, and to hopefully get him off the oxygen and overall be better. Once he gets to their goal weight, he will be having the surgery done on his heart. ~ we were told to look forward to him staying there until he is 37 weeks gestation in addition to the goal weight they want him to be, as they want him to be bigger and stronger, not just bigger before they do the heart surgery. May 1st is 37 weeks. if he is to hit the goal weight by then they will do the surgery. I’m not for sure but depending on how he does with that, we would only have to be there for as long as it takes him to heal.
As of Saturday the 12th, they have done the procedure on his heart (heart cath balloon to open up the VSD) and he is doing good, and as of the 13th they said as soon as he woke up from the procedure, he was a totally different baby. That he was moving around showing off: kicking his legs, flirting with the nurses even and holding their hands (thats my boy just like his big brother and daddy) and that the procedure did what it was supposed to do and that he was only on 2% air! almost weaned off!! Pre-eclampsia is no joke. I can’t understand or get through my head why this is happening to our family.
-
I just wanted to say thank you again to everyone for the love and support that we have received. it means more than words could ever tell."


all donations will go towards travel expenses, food, bills, gas, etc as dad wont be able to work for a little bit. i know times are tough, even $1 helps , it all adds up. and prayers are appreciated more than anything. they have a long road ahead of them that they just need a little help with

Organizer and beneficiary

Brittany Dallis
Organizer
Tahlequah, OK
harmony wardlow
Beneficiary
  • Other
  • Donation protected

Your easy, powerful, and trusted home for help

  • Easy

    Donate quickly and easily

  • Powerful

    Send help right to the people and causes you care about

  • Trusted

    Your donation is protected by the GoFundMe Giving Guarantee