Cleveland Clinic Medical Expenses

My wife Lisa was diagnosed with a very rare disease SMAS, Superior Messentaric Artery Syndrome, which has a 1 in 3 mortality rate. Less then 1 tenth of 1% of people have it. It literally starves your body from food. Our local hospital which is very well known said there isn't more they can do for us and we need to look elsewhere. She has an appointment at Cleveland Clinic in July because they have the most experiense with this illness and we will need to fly a nurse with to accompany her during travel. The hospital costs, hotel stays, and travel expenses are going to be tremendous. Any help would be greatly appreciated. Thank you
Local news station's story on Lisa