Linda's Atypical Neuralgia Treatment & Surgery

Imagine having 24/7 digging, burning and a sensation of a hole in your head, on top of that, constant  nausea, dizziness, tachycardia (high heart rate even at rest), but also low blood pressure, and shakiness. That is exactly what I am going through and have been since 2 and a half years ago.

I have seen countless doctors, tried almost every treatment out there, anticonvulsants, nerve blocks, ketamine infusions, magnesium, lidocaine infusions, DHE. Compazine, imitrex, diet, chinese herbal medicine, acupuncture, you name it, i've almost certainly have tried it. 

Many of the above treatments either havent worked or only slightly reduces my pain. But at this point any small relief is better than no relief. Most of the time, the treatments dont work or I have to get it done repeatedly which gets costly.

Not every treatment is covered, specialists can get expensive and I am trying to get surgery which costs thousands of dollars. Unfortunately I am unable to work, mostly bed bound, always having a feeling like I will just die any moment for a lack of a better word. 

I have different diagnosis atypical trigeminal neuralgia, auriculotemporal and zygomatic nerve neuralgia, inretractable migraines... they are all treated the same way and  they overlap. 

My original goal was to get superficial decompression surgery on my right auricolortemporal and zygomatic nerves. I am now having pain on both sides, as such I believe I will need to have two separate surgeries and this can get costly. The goal amount of this Gofundme is the cost for one surgery. Any amount helps. Although I may need to get two separate surgeries, I am only asking to cover one as I know money can be hard during these hard times with covid-19.

I greatly appreciate the doctors, friends and family who have been by my side. 

All donations will go directly in helping me pay for nerve blocks and for the surgery I plan to have.

Thank you for reading this far!

Cordially.
Linda L.

Note: This GofundMe will close once goal for surgery has been met. Updates will continue through Instagram but until then, updates will be posted on GoFundMe.