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Hello, my name is Lindsay Sadowski. A few days ago my mother passed away from a cruel disease called Frototemporal Dementia. Just a year and a half ago she was her usual funny, outgoing, social self. Out of nowhere things started changing. She noticed she was having difficulty with the right side of her body and her speech had become slurred. Naturally we thought this was a stroke. Multiple brain scans never showed any signs of stroke but the doctors kept going with that diagnosis. Slowly over a year things just continued to decline. By June of this year she was not able to walk safely, she lost the ability to do almost everything she loved to do. She couldn’t walk the dog anymore, walk around outside, her Aphasia (impairment of speech) was advancing rapidly and speaking was so difficult she stopped talking to family on the phone, she would talk to her best friend/cousin every morning for hours. She was then diagnosed with dysphasia which is the impairment of swallowing and she had to switch to a puréed diet. That advanced within a month and by the end of July she had to have a PEG tube (feeding tube) inserted into her stomach, she could no longer eat or drink by mouth. 4 times a day we fed her via this tube. She had become so weak and by October she was on hospice. She had lost a substantial amount of weight, she lost all use of her right hand and leg, she spent most of her time in her lift chair and always needed us to do every everyday tasks for her.
There are no tests that can pinpoint this disease and there are no treatments or cure. There is no prognosis of how long they have left. The only thing you can do is take care of them as they decline and make them as comfortable as possible until the day comes.
We woke up during the night of November 13th, 2023 and she couldn’t breathe well due to a build up of liquid in her throat she couldn’t swallow. She also couldn’t stand on her own at all. She passed that night, she could not be revived.
I had tried years before all of this to get her life ins and she was denied by every company even for just a death benefit. She only requested that I have her cremated, she did not want a ceremony or to be buried.
Due to the progression of this, we were focused on keeping her alive and the hope this wouldn’t come so soon. We have been trying to get relief from all different programs to assist in paying for cremation with no avail. We are unprepared to afford this. The funeral home does not do payment plans and the ones that do want a substantial down payment before a payment plan.
I just want to bring my mom home.
We would appreciate anything anyone could do to help us through this as we continue to try for assistance, which may never come.
We thank anyone who will help in this extremely difficult time ❤️

