Lily's Physical Therapy Fund

Hello! Every year I raise money for the Hydrocephalus Association Walk (I raised over 10,000 to date) but this year I decided to raise money for a cause that is near and dear to me, my beautiful daughter Lily.  It has taken me a while to start this campaign because of my pride but I must put that aside and think of Lily's well-being first. Lily has recently started intensive physical therapy at Keep Moving Forward in Garden City, NY. This therapy is desperately needed for her begin to stand, sit and walk independently.  Unfortunately, this therapy is not covered by our insurance at all and it cost $250 per session. Here are some pictures of her recent sessions.




So, with my pride set aside, I am requesting some help from my community. I have been writing grants and raised some money from friends and family to cover the first 22 sessions but that coverage will end on 11/5/17. If you can help that is great if not that is fine too! Feel free to share the link as well. This is taking a lot of strength for me to do so please no negative comments, you have NO idea what me and my family have been through in the last four years. Thanks for listening!

 History

For those of you who do not know Lily's story here it is! Lily was born at 26 weeks and 3 days of gestation. She was born not breathing but was quickly stabilized on a ventilator and transferred to a hospital with a level 3 NICU. Over the next 125 days life faced two major complications, a level IV bilateral Interventricular Hemorrhage in her brain (the worst kind of IVH you can have) and Necrotizing Enterocolitis. NEC is often deadly to preemies but Lily fought so hard, had many blood and platelet transfusion and finally 10cm of her intestine dissected when she was two months old. The brain hemorrhage was more serious and have proven to effect both cognitive and motor ability. Lily had her first shunt placed in her brain in June of 2013 and then had 9 subsequent brain surgeries due to infection of her cerebral spinal fluid. Lily has also had many other hospitalization due C-Diff, RSV twice and various other virus which affect her so easily. Her last surgery was in December 2017 which she had a g-tube placed so she could finally start to gain some healthy weight after two years of no weight change. Lily attends the greatest special needs school, HLVS and has come so far since she started school! Unfortunately, Lily still cannot sit, stand independently. Since starting therapy at Keep Moving Forward she has made so many strides in starting to sit without any assistance! We are so excited to see what is next for her. Thank you in advance for your consideration of a donation. Here is the link to Lily's rehabilative therapy outpaitient center

Keep Moving Forward

Thank you all! 
Kristin, Jason and Lily Maisano

Donations ()

  • Anne Pine 
    • $7 
    • 27 mos
  • Alicia Campa 
    • $50 
    • 28 mos
  • Michelle Campbell 
    • $50 
    • 28 mos
  • Toni Pincus 
    • $50 
    • 28 mos
  • Cody Mancini 
    • $50 
    • 28 mos
See all

Organizer

Kristin Murphy Maisano 
Organizer
Massapequa, NY
  • #1 fundraising platform

    People have raised more money on GoFundMe than anywhere else. Learn more

  • GoFundMe Guarantee

    In the rare case that something isn’t right, we will refund your donation. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more