Hi, my name is Olly and my wifes name is Emily, and our first child Lily will soon pass away at just over a month old due to an extremely rare heart condition called Hypoplastic Right Heart Syndrome, which effect 1 in 60,000 babies, cutting their life span to just a few days to a few weeks without intervention via surgery, however, sadly our daughter has also developed issues with the left side of her heart, so the top surgeons in the country are unable to do anything, as it'd be impossible for her to survive the operation.

We are trying to raise some funds to be able to give Lily a fairytale send off and spend as much time as possible with her, as when we stop the ventilator and dinoprostone, that will be the start of the end for our little girl, we may have a few minutes, hours, or days, and financially being in a neonatal intensive care unit for just over a month has already left us struggling to make ends meet.

Any and all support is greatly appreciated, as we are hoping to create a memorial, and just give the best possible ending for such a short and sweet life, our beautiful girl deserved better.

Thankyou for taking the time to hear our story,

All our best,

Olly & Emily