Help Lily move into a disabled friendly home.

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$2,395 raised of $5.5K

Help Lily move into a disabled friendly home.

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Tripping over bricks doesn't sound like a big deal, right? One day, I did just that. I fell and my life changed forever. I became severely disabled. That fall caused me to have Complex Regional Pain Syndrome (CRPS), in both legs from mid-thigh to my toes. The soft tissue damage also resulted in vascular insufficiency in both legs. My lumbar vertebrae to herniate. I have scoliosis. I had Harrington Rod Spinal Fusion as a teen. I was in a car accident and herniated discs in my neck and had a titanium plate and my neck fused. That fall also injured my knees which were already damaged from previous falls. Add my carpal tunnel and migraines and the radiculopathy in my arms and hands and I am disabled from head to toe. My spine is fused from c3 to c7, then from t1 to l2. Every vertebrae that are not fused, are herniated or bulging. My legs keep going out from under me and I fall. I have very limited mobility. I can't walk more than 100 feet at a time.

Before that fall. I worked full-time, as a Speech Language Pathologist. I was able to modify tasks to be functional for me. I was given occupational and physical therapy for free by my coworkers, on a regular basis. After that fall, I have not been able to return to work. That was almost 10 years ago. I have now spent my life savings. It is gone. I moved to Texas to be near my parents. They wanted to help me get a house and make it accessible for me.

Everything, I own went into storage. We got a house. We were slowed down by Covid and the supply chain making it hard to purchase supplies and long delays. We get most of the supplies. My dad was to install everything. The problem was that when it came time to do that, my dad could not figure out how to do it. He was confused. I took my dad to a new doctor. That doctor then moved out of state. My dad's doctor at the VA has not been helpful.

My dad cannot help modify my house. I tried finding someone to help and was unable to do it. If someone agreed, they wanted over $100 an hour and no guarantee of hours or installation. Meaning even if they didn't get anything, installed, I would have to pay them and they could take as much time as they wanted to install...Yelp reviews reported that many times, the handymen services were doing just that. Charging for services but not completing the installation.

The storage fees at my storage unit have more than doubled recently. I cannot afford to pay them. I have not been paying my utilities nor eating daily to pay for storage. Have not bought medications to pay for storage or had procedures done that I need. I need my breathing medications but had to choose between paying for storage or breathing. I need to have an epidural for my neck. My neck is so stiff, I could not put it on the apparatus at the eye doctor, for eye exams.

My confused father has decided that he is going to move my things out of storage. The entire contents of a 3 bedroom house in the back of his pickup truck. My dad is elderly. He has a bad back, bad knees. He cannot move my things in his truck.

He demands to try. So we go to my storage unit. My dad gets confused. He kicks boxes until they break. Threatens to kick me. (He did not.) This is a huge change in condition. My dad did fall not long before this.

I took my dad to his VA doctor. She tells him he needs to move into assisted living. She does NOT examine him. Does not perform a mental status check, does not do a neuro exam on him. Now, my dad thinks I am trying to throw him into a nursing home and lock him up. I never said, my dad needed to be placed in assisted living. I have worked in assisted living facilities. They charge large amounts for services rarely rendered. It makes no sense to move my dad to assisted living without knowing what is causing his falls or his cognitive impairments. His neuropsych testing showed normal cognition.

My father's doctor made everything worse. She knew, my father had a violent outburst. He was furious when we left that appointment. I am lucky he did not hit me. He could not get his words together. Frustration causes people to strike out. I am fragile. If he hits me or kicks me, it will cause severe injury to me.

I have no idea why she decided that moving my dad to assisted living was the answer to everything?! She put me in danger.

I contacted my brothers. They don't understand. My parents seem fine to them over the phone. They have not seen them in person in years. My parents can afford to pay for movers for me. My brothers are not going to help me.

I posted on the App NextDoor. No one offered to help me, install my modifications nor move my things from storage.

My father does not remember kicking my things and threatening me. He still thinks he is going to move the contents of my storage unit. He cannot physically do that. I cannot do it. Together we cannot do that.

I have been prescribed a wheelchair but I cannot physically put it in my car. When covid hit, no one was delivering to homes. I could not get a wheelchair to me.

I still need a wheelchair and ramps to get in and out of my house.

I am asking you to help me pay for having my house adapted for a wheelchair user.

I am asking you to help pay for movers to bring my things out of storage and help unpack. Movers are charging $150 an hour. They estimate it will be a minimum of $1500 up to $3000 to move my things and set them up at my house.

My parents are confused and I have a referral to a neurologist to see my dad. My mother also needs to be assessed. She is also confused. However, she is not falling and hitting her head. My father is the priority at the moment.

I have never asked anyone for a dime. I have paid my own way through college. I worked full time and went to school full time. I had grants and scholarships. I have lived frugally my entire life and have never used credit cards. That also means I have no credit and cannot get credit cards or loans, now. I saved up and paid cash for my cars new and used. Paid cash for everything. Did without. I am suffering for not living beyond my means. Who would have thought that would happen?

All of my money is gone now and I am living on my social security disability income (SSDI). My parents had agreed to help me financially. They understood that my disabilities were not my fault and started in childhood.

The problem is that they are now confused and the one that is having the greatest problem with their confusion is me. I can't force them to pay for anything.

I am asking you to help me. Please donate to get my things out of storage and to complete the renovations needed to make my home disabled-friendly.

Soon, I will lose everything I own. I cannot continue to pay for storage.

Organizer

Lily Crue
Organizer
San Antonio, TX

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