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This is Greg, Victoria and their beautiful family. Victoria has been struggling with a virally-induced dysautonmia that is significantly impacting her health and her daily life. After a cascade of viral attacks, she began to experience symptoms that presented like mini-strokes. No relief or answers were found locally after multiple ER visits. Because of the severity of her symptoms, the family had to get Victoria to Mayo in Phoenix for care. After two trips to Phoenix, Mayo neurology was able to give her a formal diagnosis, determining that the viruses had attacked Victoria's central nervous system. While they were able to give the problem a name, they told her there is no cure and that all they could do was offer medications to try in order to find the best combination, in hopes of helping her become stable. Several months after an official diagnosis was made, trialing medications made it possible for her stay out of the ER, drive again, and use a wheelchair less. However, she is still significantly impacted on a daily basis, monitored by a vast care team of providers with whom she continues to pursue a path to wellness. Recently, she was able to have an appointment with a provider who suffered with the same diagnosis, and who has regained her health to the point that she can even exercise again (which Victoria would be thrilled to be able to do again eventually!). With the help of technological advancements, her practitioner was able to determine a promising course of action. Victoria is in need of a very specific type of light therapy and devices to help with healing. The light therapy is provided through a helmet that the family would need to purchase. This would directly apply the healing medium necessary to the white matter of her brain and brainstem, and can help improve Victoria's health on a cellular level, improving the function of her mitochondria, which she truly needs. Unfortunately, the family does not have the financial means to pursue this costly therapy. They have struggled to reach out for help since the time of Victoria's diagnosis, not because they do not want to let others in on the hurdles they have been facing, but because they are keenly aware that so many of their family and friends have their own significant needs. They simply do not want to put anyone in a hard situation- no surprise to anyone fortunate enough to know them and to have experienced their kindness, joy and generosity. Their goal for funding is based on the need for medical equipment, care and debt that has been acquired on a lengthy journey to advocate for answers and treatment. They look forward to a time when they are on the other side of this valley and are better able to help others in their times of need. while no certain cure currently exists for her condition, extensive research is being done in the medical field to find options for diagnoses like these, as cases have skyrocketed since COVID. Victoria hopes to achieve the healing necessary to be able to stand more often, stand for increased lengths of time, to be able to go on family walks, to play hide and seek and tag with the kids, and be well enough to participate in the rehab exercise plan set by her Mayo exercise physiologist. She and her family thank you sincerely for your generosity and willingness to help them; even if you are not able to financially support them, or do not feel led to do so, they would appreciate your prayers for their family. They also want to thank all who have helped their family in the months past by generously giving support, prayers, food, care packages, cards, etc., as many of you have already done.
Organizer and beneficiary
Victoria Jarman
Beneficiary


