Jenny is a beautiful friend of mine who until 6 years ago was full of life, had a great social life.
loved her job, dogs, volunteering work and most of all being a mother to her two autistic children Connor and Travis.
Unfortunately this is no longer the case as Jenny suffers from a debilitating chronic illness which most days leaves her unable to think straight/function or even get out of bed.
When Jenny initially became chronically ill the specialists in Hull were unable to figure out why which resulted in Jenny having to borrow the money to see a specialist in Newcastle where it was discovered that she had type 1 mast cell disease.
The debilitating symptoms from this cruel disease effect her whole body, including brain function, chronic pain, postural tachycardia syndrome, M E and many other complicated factors that leave her at present with absolutely no quality of life.
She struggles on a daily basis with chemical/smell allergies, food allergies (resulting in her being tube fed in the past). Jenny wears an allergy mask and nose cannula with filtered air to help with the reactions, however her life is extremely restricted, she has no social life and very little contact with anybody due to her brain function being so severely affected and such severe reactions to all scents/creams/aerosols/ shampoo etc that people use in everyday life.
The Hull NHS referred Jenny to a mast cell specialist in London because her condition is so rare. The specialist in London put Jenny on a lot of medication including two types of mast cell stabilisers, 4 types of antihistamines,
However unfortunately mast cell disease has no cure so the London specialist has done all that he can do.
Her worst symptom for her by far from this cruel disease is chronic internal fungal candida infection that her immune system just cannot fight, resulting in her having constant allergic reactions to this within her own body. Jenny and UK doctors have tried numerous treatments to try and fight this infection however the infection constantly returns
After much research we have found a clinic in America offering a new technique called Pharge Therapy which has a 95% success rate on this type of candida infection, we’re both fully aware it is not a cure for her mast cell disease but removing the Candida will massively improve her quality of life and greatly reduce the severe allergic reactions which have hospitalised her and left her bedridden so many times in the past. Sadly this treatment is not available in the uk however it is being widely used in the US and Western Europe with great success. This treatment like most private treatments is far from cheap and certainly not affordable to Jenny so this fundraiser is my attempt to raise the money needed for Jen to be admitted for the 4-6 week treatment and hopefully offer some light at the end of this very long tunnel for Jen and her gorgeous boys .
Thank you so much for all your support, this really would mean the world to Jenny.
NO donation is too small ........ everything helps
Please share and if anyone feels they could help with their own fundraising ideas please get in touch ❤️
Monies raised are to cover -
return flights to America (Jenny and Carer)
transport costs for -airport/transfers/hospital visits / initial hospital tests
4-6 week treatment package
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- Laura Howlett
- Pam Shaw
- Liz Holmes
Organizer and beneficiary
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