Some stories are hard to tell - not because they lack hope, but because they carry a weight that most families could never imagine. This is one of those stories.

On March 27th 2025, this faith-filled family of five received a life-altering phone call regarding their son's newborn screening results which led to the discovery that two of their three children, Saven and Fletcher, have MPS 1.

MPS 1 is a rare and progressive genetic disease. It involves the lack of an enzyme that breaks down harmful substances in the body. Left untreated, it could significantly affect their quality of life. Upon further testing, it was found that their specific genotype of MPS 1 is just as rare as the disease itself. It’s involves a later onset, in which symptoms usually appear in teen or adult years, but has already begun affecting their young children. Saven is already showing buildup in her liver and heart - not harmful to her now but a sign that the disease is silently progressing.

TREATMENT UPDATE: 

After months of receive ERT (Enzyme Replacement Therapy) in Charlotte, the Lloyd’s were able to get admitted to and start treatment in Minneapolis, Minnesota at the end of January. 

Saven’s Bone Marrow Transplant took place on March 12, 2026. Her younger sister, Mercy, was a perfect match as a donor! Saven has went through some really tough times but is improving daily. June 20, 2026 will mark her 100th day. Please be with us in prayer for full engraftment and no sickness/setbacks on the way. 

Fletcher will start his work ups soon and is set to be transplanted on June 10, 2026. Please remember him as this will be tough on his little body, along with his lack of understanding about anything happening. 

This isn’t the mild version the family had prayed for. It’s a form that sits somewhere between the medium and the worst cases — difficult to categorize, but impossible to ignore.

The light in all of this is that if Fletcher had not been diagnosed with this from his screening, Saven's diagnosis would likely not have been caught until it was too late. Since it was caught at such a young age (which is unheard of in this genotype) - there is hope that the correct treatments can give them a normal life.

It’s an overwhelming storm — emotionally, financially, and physically. Hospital stays. Long drives. Medical decisions that would shake any parent. And still, they must think about their third child, who can’t yet understand why her world is changing too.

But through the tears, confusion, and fear, the Lloyds are holding fast to their faith. They know that God is with them, even in this valley. It is abundantly clear that He has already had His hand in all of this. I am asking for help on their behalf — not just to survive this season financially, but to fight for the futures of Saven and Fletcher and make sure they receive the BEST care.

Your donation will go directly toward:

My goal is to help this family hold onto a sense of normalcy during this incredibly difficult time by easing some of their financial burdens so that they can focus on what matters most - each other.

And above all — we ask for your prayers. Prayers for wisdom. For healing. For peace. For strength. For these babies.

Let’s lift this family together.

Isaiah 41:13 – “For I am the Lord your God who takes hold of your right hand and says to you, Do not fear; I will help you.”