Life With Liam

Our little boy is profoundly disabled. He was born with a very rare genetic mutation and a rare pain condition. He is visually impaired and has cerebral palsy because he has a pain attack at 7 months so severe he stopped breathing. We count every day as a blessing but also don't take anything for granted, even if Liam's health is stable. We have learned from experience that anything can happen. Because Liam's condition is so rare, we don't know what the future holds, except that it will be a challenge for all of us, and we would like to make it as comfortable (and as joyful) as possible. We are raising money to pay for equipment to make looking after him easier. We would also like to provide him with some intense therapy that other funding would not cover.