This photo was taken the day we got my baby Eleanor’s diagnosis.

My heart shattered not just for her, but for my son, for my husband, and for the life we thought we’d have.

We were told there was no treatment. But I refused to accept that.

We found a small biotech team who believed in Eleanor and worked day and night and together, we created what we hope is her cure. We created an FDA APPROVED DRUG called “Eleanor”

Our family has poured everything into this our savings, our time, our tears. We fought through 2.5 years of pain, relentless advocacy, and sleepless nights, sleeping 3–4 hours a night, praying for answers.

Eleanor was originally diagnosed with two GABAAR disorders and there was NO INFORMATION ONLINE so I started a non profit called CURE GABA-A. Later we found out that she had Rett Syndrome. I couldn’t control her diagnosis. But I could control how I responded. Even though CURE GABA-A wouldn’t benefit Eleanor we continued the fight for the other families with children who had GABAAR mutations.

Today, we’ve found over 300 families across the globe. And:

We have a drug.

We have the biotech.

We have the mice.

But now they need money.

CURE GABA-A is closer than ever to testing the drug that could change everything for these families.

From the very first day, every dollar our friends gave out of love for our family, we turned around and paid it forward.

We donated all of it to help other families.

In fact, our family personally funded the nonprofit through its first year.

Because this was never just about our daughter, it’s about every child with a GABAAR disorder.

Together, we’re building a future where no parent has to hear “there’s nothing you can do”