Life with Leo

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£507 raised of £500

Life with Leo

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Hi!
I’m Georgie, Leo’s Mum.
I’m swallowing my pride & starting this go fund me to get genetic testing done for my beautiful little boy, from 5 days old I knew there was something wrong with Leo, crying for 18 hours, doubling over in pain, wincing while sleeping and other typical unwell baby symptoms.
i have had an 11 month battle to get this far with only 1 out of 4 pediatricians taking me seriously after our wonderful Dr Cowin organized a stool test for us which showed Leo had a fructose digestion issue. Now this alone isn’t something overly worrying however his % was high, his symptoms were real & very much a problem But as they say “he’ll grow out of it” with one saying “he looks like a bonny baby to me”
the thing is, he is a bonny baby, however that doesn’t mean he can’t be in absolute agony when he is being poisoned by frustose! HFI is a genetic life long disease that won’t ever go away, fructose malabsorption on the other hand will
we need a genetic testing doing so we can establish 100% which of the 2 he has & this seems to be impossible for me to get done for him via the NHS!
mannin private Drs are going to try and get the test for him, and this is where I need your help! I say I, Leo needs your help. I want my little boy to live the best life he can & my only way of doing that is making sure I feed and water him safely.
Any donation or even a share would mean more than you can imagine.

please note I have had to use my dads postcode as it won’t allow me to use an Isle of Man postcode

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