Life Changing Medical Needs for Addie
Donation protected
Adeline and her family moved to Tennessee a year ago, seeking a chance for better medical care, and found it here in our community. Doctors in Tennessee have saved her life — now, she needs our help to start living it.
Despite the brilliant light she brings into this world, Adeline endures daily suffering living in her body due to a genetic disorder and multiple medical conditions. In the past two years of her life she has been confined to a bed. This is on top of a lifetime of hospital admissions, ICU stays, and loss of everyday functional abilities, taking away her childhood.
Adeline’s genetic disorder has taken her sight, twisted her legs leaving her unable to walk, and ruined her ability to eat or drink by mouth. At this time, she does not have the ability to get out of her bed. To receive nutrition, she is attached to a central line in her chest. She is also given medication continuously through this central line in addition to a feeding tube to keep her alive. Adeline’s multitude of medications keep her from anaphylaxis, as well as give her pain control from nerve pain, daily dislocations, bruising, spine and neck instability, and tissue fragility that compromises her body on a daily basis. Adeline’s family continually fights for her quality of life, but insurance companies often deny requests that would give Adeline what she desperately needs.
Here is how you can help:
Adeline’s needs and the estimated prices:
1. — A hospital bed $40,000
2. — A lift to get out of her bed and into her wheelchair $3,000
3. — A paved driveway and ramp $7,000
4. — A modified van with a lift (where she can lay down in her wheelchair) $60,000
5. — New eSight goggles $10,000
These are more details on why Adeline needs these things to give her independence, and a better quality of life:
Perhaps the most imperative on this list is the hospital bed, which would help the positioning of Adeline’s delicate body and daily medical procedures, as well as prevent aspiration pneumonia hospitalizations. This bed can be tilted up and down for Adeline’s comfort and care. It can also be lowered and raised for her caregiver’s needs in assisting her.
This bed would give her mom the ability to safely take care of Adeline’s daily needs. Adeline’s mom has the same genetic disorder, and recently injured her spine, which was compounded from the daily physical assistance Adeline requires.
Adeline also needs a special lift that keeps her body flat so she can get into her reclined power wheelchair. At the moment, she is only able to get into her wheelchair if she is lifted carefully by 4 to 5 strong adults who can safely move her without injuring her neck and spine. They also must make sure that her central line is not harmed during the process.
To get to vital medical appointments and specialists, her family needs a vehicle with a lift. Right now, Adeline cannot leave her home without an ambulance.
Without a medical team and ambulance, Adeline is totally confined to the bottom floor of their home. A paved driveway would allow for safe transport, as well as access to the main floor of her house. Currently, if company comes over, they must come to her to visit. A paved driveway would give her the independence to move more freely in and out of her own home.
Finally, Adeline is blind, and she relies on an expensive technology called eSight. Her glasses are now in need of repair and must be replaced. This is the only way Adeline can see. These glasses also give Adeline the ability to be an artist, a skill which she has passionately crafted and cultivated for years. For Adeline to have her eSight updated would not only be a blessing but would also greatly boost her quality of life, and the beauty in her world.
It brings us to tears hearing Adeline’s story, and her family’s daily fight to get the quality of life we would all want our children to have.
You can help Adeline have a quality of life worth living! Let’s come together and make this happen!
Thank you for your donation and sharing our link!
*All proceeds of this gofundme will be used to purchase the needed items for the Graf Family through Kelli Coyne and Friends.
Despite the brilliant light she brings into this world, Adeline endures daily suffering living in her body due to a genetic disorder and multiple medical conditions. In the past two years of her life she has been confined to a bed. This is on top of a lifetime of hospital admissions, ICU stays, and loss of everyday functional abilities, taking away her childhood.
Adeline’s genetic disorder has taken her sight, twisted her legs leaving her unable to walk, and ruined her ability to eat or drink by mouth. At this time, she does not have the ability to get out of her bed. To receive nutrition, she is attached to a central line in her chest. She is also given medication continuously through this central line in addition to a feeding tube to keep her alive. Adeline’s multitude of medications keep her from anaphylaxis, as well as give her pain control from nerve pain, daily dislocations, bruising, spine and neck instability, and tissue fragility that compromises her body on a daily basis. Adeline’s family continually fights for her quality of life, but insurance companies often deny requests that would give Adeline what she desperately needs.
Here is how you can help:
Adeline’s needs and the estimated prices:
1. — A hospital bed $40,000
2. — A lift to get out of her bed and into her wheelchair $3,000
3. — A paved driveway and ramp $7,000
4. — A modified van with a lift (where she can lay down in her wheelchair) $60,000
5. — New eSight goggles $10,000
These are more details on why Adeline needs these things to give her independence, and a better quality of life:
Perhaps the most imperative on this list is the hospital bed, which would help the positioning of Adeline’s delicate body and daily medical procedures, as well as prevent aspiration pneumonia hospitalizations. This bed can be tilted up and down for Adeline’s comfort and care. It can also be lowered and raised for her caregiver’s needs in assisting her.
This bed would give her mom the ability to safely take care of Adeline’s daily needs. Adeline’s mom has the same genetic disorder, and recently injured her spine, which was compounded from the daily physical assistance Adeline requires.
Adeline also needs a special lift that keeps her body flat so she can get into her reclined power wheelchair. At the moment, she is only able to get into her wheelchair if she is lifted carefully by 4 to 5 strong adults who can safely move her without injuring her neck and spine. They also must make sure that her central line is not harmed during the process.
To get to vital medical appointments and specialists, her family needs a vehicle with a lift. Right now, Adeline cannot leave her home without an ambulance.
Without a medical team and ambulance, Adeline is totally confined to the bottom floor of their home. A paved driveway would allow for safe transport, as well as access to the main floor of her house. Currently, if company comes over, they must come to her to visit. A paved driveway would give her the independence to move more freely in and out of her own home.
Finally, Adeline is blind, and she relies on an expensive technology called eSight. Her glasses are now in need of repair and must be replaced. This is the only way Adeline can see. These glasses also give Adeline the ability to be an artist, a skill which she has passionately crafted and cultivated for years. For Adeline to have her eSight updated would not only be a blessing but would also greatly boost her quality of life, and the beauty in her world.
It brings us to tears hearing Adeline’s story, and her family’s daily fight to get the quality of life we would all want our children to have.
You can help Adeline have a quality of life worth living! Let’s come together and make this happen!
Thank you for your donation and sharing our link!
*All proceeds of this gofundme will be used to purchase the needed items for the Graf Family through Kelli Coyne and Friends.
Co-organizers (4)
Kelli Coyne
Organizer
Columbia, TN
Gabe McCauley
Co-organizer
Isabella Coyne
Co-organizer
Mandy McCauley
Co-organizer