Life After Lyme Disease - Help Me Help Others!

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Life After Lyme Disease - Help Me Help Others!

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Hi! My name is Christy and today I am asking for your help to create my new future and help other people who are suffering from mystery illnesses!

I’ve been in full time treatment for over 3 years in Puerto Vallarta, Mexico for chronic lyme disease. After a lot of hard work and years of very expensive treatments, I am finally on the road to remission and looking to create my “what’s next” in life.

Specifically I am asking for donations to help me publish a book and create my coaching/consulting practice so I can help others facing this brutal disease.

A little more about me and my story:

After almost losing my life while living in invisible mold, I was diagnosed with a genetic mutation, chronic neurological lyme disease, mold toxicity, mast cell activation syndrome (MCAS), babesia, Multiple Chemical Sensitivities (MCS) and parasites at the age of 49. Even though I was likely born with this disease, it took 49 years to get an accurate diagnosis! And that was not for lack of trying.

Like most lyme patients, the road to diagnosis was a very long one. Unfortunately, because tick borne diseases, parasites and mold toxicity are not taught in medical school, knowledge is lacking, testing is unreliable and getting to a diagnosis takes years. For me, it was over a decade of serious hunting that finally led me to answers.

Looking back at my life, it all makes sense. The signs and symptoms were there, for decades, screaming for help but no medical professional could put the pieces together. Unfortunately it’s much easier to have a dog diagnosed and treated than a human.

Because the CDC does not define chronic lyme disease as a “real” disease, insurance is not accepted, medical funding options like disability are not available and medical knowledge is extremely limited. Its a cash pay world and most of us are forced to become our own doctors and manage our own care. There is NO CURE, remission is what we seek. Going back to a “normal” life without serious health and lifestyle restrictions is not an option for me.

In order to get answers, most patients must endure what I call a medical marathon. What’s a medical marathon? It’s when you start going to doctor after doctor, hospital after hospital, test after test, researching, running, chasing and hunting for answers. This doctor passes you off to that doctor who wants this test who then sends you to another doctor for another set of labs and the process starts all over. It’s long, it’s hard, the gaslighting is extreme and many end up with medical PTSD from the experience. And most still don’t get answers!

No one should have to wait 49 years for answers! No one! The lyme world needs a reboot. It’s a very dark, lonely, expensive and depressing place. I’m ready to change this.

We have answers! We have options! You don’t have to wait 49 years for a diagnosis and you don’t have to endure 3 years of harsh treatments in order to get well. Through functional medicine and alternative treatments, I have discovered many tips and tricks to diagnose and heal from these terrible diseases. With your help, I will be able to share my message with the world and help other people who are suffering.

After I was diagnosed, life in my hometown of Tampa, Florida was not looking so great. My health insurance had been cancelled (it’s pretty worthless anyways), I had already spent a TON of money on useless treatments, I had to live in special mold free housing which was extremely expensive, everyone seemed to be angry at me vs. supportive and treatment options in my area were lacking.

One doctor in my hometown wanted $16k to walk in the door. Doctors in other cities were quoting $80-100k to get started. I didn’t have this kind of money.

I quickly figured out, if I was going to survive in the lyme world, I needed to start figuring out things myself.

I dove into research, read books and medical journals, attended countless summits, participated in a 3 month mastermind group with other warriors, spent a TON of time in the Facebook groups (where the real answers are) learning and networking with other patients.

I was so determined to get well, eventually I went back to school studying Functional Medicine, the branch of medicine that looks for root causes and is the most successful at treating lyme. I am now a Certified Functional Nutritionist and Holistic Health Counselor! While I have helped a lot of patients over the past 3 years, with your help I will be able to set up my own practice so I can help even more.

My family used to tell me I was addicted to the computer, addicted to being my own doctor and addicted to figuring out my diagnosis. While they looked at this in a negative light, it was exactly what I was doing! If the doctors weren’t going to help me, I wasn’t going to wait around for someone who could. I knew there had a be a better way.

Through research, I found a plethora of treatment options and care, for substantially less money, in Puerto Vallarta, Mexico. Within a few weeks I was on a plane. I thought I would be gone for 3 months. It’s now been over 3 years of full time treatment and over 4 years since I’ve been able to work.

While most people think I’m on vacation, living it up in Puerto Vallarta, nothing could be further from the truth. Reality is, treatment life is no fun.

While these infections are hard to diagnose, they are equally hard or harder to treat. There is no “standard” treatment, everything must be customized to your specific disease cocktail and your individual sensitivities. You spend a lot of time recovering from the harsh treatments, barely able get out of bed, dealing with everyone who tells you you don’t look sick, researching, waiting to see if one treatment works while planning your next. These treatments are similar to going through chemotherapy except we don’t lose our hair and don’t get nearly as much support or guidance. And we pay cash.

Sometimes treatments “work” but just end up causing other problems down the road. There is a LOT of trial and error to see what will work for you.

Thankfully, in Mexico, scripts are not normally required and medication prices are much lower, its much easier to biohack and try to figure out things on your own. For example, the parasite medication I tried to get in the US was going to be over $12K, its a few dollars a box here. There is also an amazing array of holistic, alternative and spiritual treatments.

I call myself my own guinea pig and bio hacking has paid off! It’s taken a while but remission is finally knocking on my door. It’s now time for me to help other patients tackle this disease, skip the expensive doctors and treatments and pass to the front of the line on the road to remission.

Never in a million years did I ever think I would have to try so many things to get to remission. Some of the treatments I have tried include: lots and lots of IV therapy, chelation for heavy metals, binders for mold, coffee enemas, ozone therapy, hyperbaric oxygen, stem cells, accupuncture, chiropractor, a million massages, Ivermectin horse paste, chlorine dioxide, ionic sauna, mushrooms, ionic Footbath, water therapy, hypnotherapy, energy healing, reiki, plasmapherisis, 10 pass ozone, quantum water, meditation, sound healing, more supplements than you could ever imagine, garlic suppositories, peptides, Neti pot, low histamine diet, neurotherapy, red light therapy, temazcal, breathing exercises, Intuition Painting, cold laser, im sure I missed a few.

It’s a lot easier to ask me about treatments I didn’t try as I have pretty much tried them all!

Now that I am on the road to remission, it’s time to start thinking about my “what’s next” and getting back to a productive, more normal, life. I found during treatment, a couple of things made a big difference in my life: writing and helping others figure out this mystery.

I have been writing about my adventures on my Facebook group page, Spinning Circles with Christy, for over 5 years. Writing helps me make sense of this absurd world. Since the beginning, I’ve wanted to write a book and now, with your help, I have that opportunity!

I have been invited to participate in a womens book project through Influence Publishing. In this book, 15 Women of Influence in Puerto Vallarta will come together and each publish a chapter reflecting our power of persuasion to create positive impact through listening to the needs of the community.

The book will be published on March 8th, International Womens Day. Many opportunities for promotion are included in the project and all profits will be donated to a local orphanage called Rise Orphanage. I am also auditioning to create a TED Talk in January.

Aside from publishing the book, I am also hoping to set up a coaching/consulting practice so I can help others who are sick and facing this life altering disease. Based on the principles of Functional Medicine, my practice will help others get off the endless medical marathon by finding the root cause, the key to healing. Everything else is just a bandaid until you find the root cause. Treat the root cause and watch patients get better, for good.

I also help patients navigate the myriad of lyme treatment options, get out of living in mold, kill parasites and detox.

Lyme is a very expensive illness and budgets go fast if you’re not careful. I’ve seen enough people fail at the expensive clinics to know they don’t work. Unlike Western Medicine, we have the answers! We just need to help others find their root cause.

In Functional Medicine, we are true health detectives. I do what doctors don’t have the time or patience to do - we start the discovery process at birth!

Everything is connected and all has a root cause, we just have to find it! We research patterns, examine lives, match story with symptom, review medical records, translate all the “weird” seemingly unrelated events into clues which help us search for the root cause of disease.

Early on in my treatment, I participated in a lyme mastermind group with 9 other warriors who I call my Lyme Squad. The group was led by my former coach and fellow patient Lisa, one of the most lyme knowledgable women I have ever met!

Lisa had just published a book and was actually the first person to diagnose me clinically. I couldn’t believe it, after going to doctors around the world for a decade, this coach had my answers! Lisa was my lifeline and the personal support was truly priceless. As lyme doctors will tell you, often the patients are the ones who figure everything out.

Everyone in the Lyme Squad had various treatment backgrounds and histories and were in different stages of treatment. It was a great way to learn about the myriad of healing options that are available. We had a bi-weekly coaching session, a weekly group zoom session, emergency text support (which I used quite often) and a private WhatsApp group for support. I don’t know what I would of done without this group! It provided the foundation for my healing.

I learned then healing does truly take a village, this stuff is just too hard and life consuming to do on your own.

I hope to set up my practice and help others in a similar way! You don’t have to wait 49 years, try a million different treatments or spend crazy amounts of money to get well. There are options and I can’t wait to share these options with the world.

I am hoping to raise $5,000. This money will pay for the book project, allow me to take additional certification classes, create a website and craft my business offerings. Any excess funds will be used for business building and treatment.

I’m sure you may be wondering, is this girl well enough to even take this on? All I can say is, YES! To the best of my knowledge, I believe I am at the point where I can start sliding back into the real world. BUT, it’s going to be a slow process and I have to give myself time for ample rest.

It took me 49 years to get that sick. My introduction back into life will be slow and calculated. I hope to start seeing patients in February 2024.

I recently found a new parasite clinic in Puerto Vallarta and am currently on week 5 of their 12 week protocol. This is the best, most comprehensive protocol I have found anywhere! If only I had found this clinic a few years ago, i don’t think I would of been sick this long. It’s a very local clinic, not five star in building and amenities like the other clinics in town. Doesn’t matter to me! That’s what I set out to do on this mission, find a better way. And I have.

While harsh and extremely time consuming, I am responding very well to the treatment and my Doctor thinks I will feel better and better as each week progresses. I’m still having my off days, especially around the full and new moons, but overall I’m able to do more than I have in a very long time.

During treatment you’ll hear a lot of survivors say, you’ll be happy this happened to you. I always said, hell no, not in a million years, I will never be happy for this departure from life.

But finally, as I continue to get better, I can say I am happy and grateful for this experience. Now that the pathogens and toxins are cleared from my body, I feel like I am a completely different person, steeping out into a whole new world!

While I have been bed bound most of these 3 years, life is changing and I’m able to do more and more every day. I’m no longer hammered by brain fog, I’m not in
daily level 10+ chronic pain, I can eat without worrying I’m going into anaphylaxis, I don’t wake up surrounded by dread and darkness and the once daily mini strokes have stopped. I feel healthier and happier than I have in a long time. I am also enjoying watching my once heavily inflamed body return to its normal size.

I am ready to conquer the mystery illness world - get people off the medical marathon and into affordable treatment.

Thank you in advance for your consideration! There is Life After Lyme and I can’t wait to start truly living again.

Organizer

Christy Annis
Organizer
Tampa, FL
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