My nephew Liam Salmon age 4 was diagnosed with a terminal brain tumor DIPG January 4th this year. His mother and him were air lifted from Redding to Sacramento at UCDAVIS. We quickly learned he had a brain tumor. While waiting for biopsy results we stayed at The Ronald McDonald House. When they were given the results we found he had a strange DNA in the Tumor. They offered them a new treatment at UCSF, a treatment that has never been given to a child. Liam went through 30 radiation treatments and the trial drug ONC201. March 17th was his last radiation treatment and we were able to come home. They now have to take trips to SF for his MRI’s and other special treatments. He remains on chemo therapy thru his clinical trial.
I’m trying to help the family , they said this should help them stay home from work to be with him, forever grateful. We would like to thank the community and everyone for supporting us.
We have several family members that live in Lake and Mendocino County and on May 23 we had a parade for him in Ukiah CA. This video was the lead police officer in the parade and sent this video to us. We had 123 vehicles in the parade, 5 police vehicles, 73 motorcycles, 8 fire trucks and several cars and trucks, some pulling trailers with tractors. Thank you again to everyone that helped put that together. Liam loves tractors , police cars,fire trucks, ambulances, motorcycles and old cars. So you can imagine the smile it put on his face. Most of all we need all the We can get. You can follow his journey @ #liamstrong2020
Thank You again Jennifer Syfert( Liam auntie )
Thank you so much
Howard, Mary and Liam Salmon
- Robyn Withrow
- Yanelis Batista
- Jennifer Ruhberg
Organizer and beneficiary
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