Liam's Leukemia treatment
Liam has been fighting leukemia for over 3 years since being diagnosed at 2yr, with Pre-B Acute Lymphoblastic Leukemia in April of 2017. Liam was nearing the end of his treatment when we received the devastating news that his leukemia was back. Liam had relapsed. We were yet again heartbroken. Facing cancer once was life altering, to face it a second time almost seemed unbearable. At the beginning of 2020 Liam was admitted to UNM hospital to start his new road map that included much more aggressive and harsher chemo treatments. During this time the doctors were finding that Liam’s leukemia was not responding to the treatment like he should. After consulting with doctors out of Children’s Hospital Colorado the decision was collectively made to head to CO to start a relatively new cancer treatment that was showing promising results in children like Liam. In March Liam went up to CO to start the collection process for the CAR-T cell transplant and in May Liam returned to CO to received his newly modified ninja cells. Liam remained in CO for a month after infusion where he attended twice a week appointments for monitoring. Liam was admitted to the hospital for a week during this time for side effects of the CAR-T’s, but all in all Liam did very well during his time in CO. Around day 30 post CAR-T transplant Liam underwent a diagnostic bone marrow biopsy and lumbar puncture to see if the transplant was successful. Soon after Liam and our family received the wonderful news that Liam’s leukemia cells were gone! Everyone one celebrated! Then we received the devastating news that the b-cells still remained. The purpose of the CAR-T cell transplant is to destroy the b-cells along with the leukemia cells. The concern with the b-cells remaining is that the leukemia might come back. After lots of tears we, as a family sat down with Liam’s transplant doctor and went over all options. In the end we prayerfully made the decision to move forward with a bone marrow transplant. Late August, we all moved into a place in CO designed specifically for families like our. That next Monday Liam started the work up in preparation for his bone marrow transplant. We praise God that our daughter, Bella is Liam’s 100% bone marrow match and we are so grateful and proud that she has made the decision to be her little brother’s donor, his hero! Our stay in CO will be a long one. Liam has started a week and a half of tests and procedures leading up to 7 days of cranial and full body radiation. He will then be admitted to the hospital where he will receive 3 days of heavy chemo that will then lead to transplant day, Liam’s 2nd birthday. After transplant Liam will remain in the hospital for at least a month were he will start the slow process of healing and regrowing a stronger and healthier bone marrow. It has been explained to us that Liam will have the immune system of a new born. Keeping him safe from germs and allowing his body to heal is critical. Once Liam is able to come home from the hospital, he will have to remain local to the hospital for 100 days before we can return home. This time will be full of appointments and any supportive treatments that Liam’s body will need to recover. This will be the biggest and hardest battle Liam and our family has ever faced. Liam’s Daddy will be here for the first few months of Liam’s transplant, but then will return back to NM to continue to work and pay the bills. We are so incredibly grateful for the kindness and support that Josh’s job has shown us during Liam’s years of treatment. We have no idea where we would be today without their dedication to our family. However the reality is that Josh has taken a pay decrease while he is here in CO and the blow of medical bills and every day expenses pile up. Every hospital stay comes with a $1,500 out of pocket ico-pay that we will be responsible for as well as clinic visits, doctor's fee's, radiation, chemo, and medication expenses, and the extra day to day and unexpected expenses that come along with Liam's treatment and living in a different state from our home. We still continue to pay for medical bills that are still coming in from prior treatments. However with all this being said, we first and foremost are asking for prayers. Our family has been on a journey of fighting and striving to see our Liam healed. We know that above all, God has our son and family in His hands and that He is the ultimate healer. Please help us pray over our son Liam and his continued battle with this relentless disease. Help us pray over our incredibly brave daughter and her recovery. Please pray for our time here in CO and when we have to be apart as a family and the strain that will bring. We have been knocked on our knees again, but we know that with God we will get through it all ones more. We are grateful and truly appreciate anything you are able to offer as it will go directly to Liam's medical expenses and help relieve the financial burden.
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