Lexi's Hero Arm fund

Meet Lexi — our brave, funny, and determined 12-year-old daughter who has never let anything hold her back.

Lexi was born with a limb difference caused by amniotic band syndrome, a rare condition where fibrous bands in the womb restricted the growth of her left arm. We found out at the 18-week scan that she would be missing her left hand, and while it was a shock and left us worried about how she would manage, Lexi has grown into a strong and inspiring young girl who approaches life with courage and creativity.

She made her entrance into the world early at just 32 weeks, weighing a tiny 3lb 4oz. Lexi spent the first five weeks of her life in the Special Care Baby Unit at York Hospital, where she fought hard and showed the resilience that still defines her today.

Now 12, Lexi continues to amaze us. She’s fiercely independent, loves art, football, and spending time with family and friends, as well as her pet bunny Benjamin! and doesn’t let her limb difference stop her from chasing her goals. But as she grows, the challenges become more noticeable and that’s where the Hero Arm comes in.

The Hero Arm is a state-of-the-art bionic prosthetic designed especially for children and young people like Lexi. It will give her greater independence and functionality in her daily life — helping with tasks that most of us take for granted. Even more than that, it will give Lexi a huge boost in confidence during such an important stage of her life.

While the Hero Arm is available on the NHS, we’ve been told the waiting list is a long one and could take years to reach the top of the list, despite Lexi already meeting all the necessary criteria. After every hospital visit, she leaves feeling deflated and frustrated, questioning whether she’ll ever feel “normal.”

To get Lexi her Hero Arm privately, we need to raise £20,000. Every donation, no matter the size, and every share of her story helps us get one step closer to making this dream a reality.

Thank you for taking the time to read about Lexi. Your kindness and support means the world to us and brings us closer to seeing Lexi live life to the full with two hands and a big, confident smile.

We are raising money through The Open Bionics Foundation, and any donation will go towards Lexi getting a Hero Arm. Thanks in advance for your contribution to this cause that means so much to me.

More information about The Open Bionics Foundation: The Open Bionics Foundation provides financial support to socioeconomically deprived people with limb differences who need multi-grip upper limb prosthetics.