I'm Lexa Terrestrial. I'm a sick artist. I wasn't always but
My medical story is crazy. I've been dealing with a rare condition for 8 years. Finally found a specialist capable of properly handling my difficult case. But it requires a major 9 hour surgery. ! And Surgery - it costs - $23,356.00. It's obviously out of state - so not covered.
I'm looking into loans. Rn I've had sm expenses. Traveling alone is costly.
YOU helped raise $4K which is AMAZING - BUT, that's only covered the %20 pre-operative costs. Ugh, America... And with all the consults, traveling, hired nurses, anesthesia, ect. It's been even more. But I have faith... we can do this.
Shit, if Bat-$*&^% Karen's can raise $75,000 for assaulting someone with "free speech" at Walmart... come on...
Here is proof of surgical cost.
I've gone back & forth in my head, I have sm PTSD because of what happened to me.
Ya'll know my distrust of doctors but
But I have an incredible, understanding, gentle Doctor. Who I am grateful for. My Doctor is so worth it & frankly the reason I am confident in finally moving forward. They've put me at ease & been reaassuring & meticulous. When all faith was lost. I've been dealing with this for 8 YEARS - living in fear & pain. Fear I'll always be stvck w this. Even though I'm scared, I'm sick of breathing tubes, the sinus infections, the doctors, the sickness, the q-tips, the depression, anxiety & mental/physical pain & not being able to live my life.
I assumed it may actually be even more expensive.
But yes I will have to raise the amount.
As you know the number 23 is a sacred number and follows me around, letting me know I am ok. I told myself if that number appeared I'd be ok.
Did not expect it to be that specific amount. Even though I don't believe in that stuff - I will take it as a sign.
I had a benefit show last summer & have been busting my ass since.
There's been many times that I've truly contemplated ending it- it'd be easier.
All the support, people reaching out, the love it's kept me bravely going.
I thank you for that. I've felt like what if I am not worth getting better.
This is precisely why I am such a STRONG advocate of accessible healthcare for all. Adequate too so things like what happened to me don't happen to others at the alarming rate they do.!!!!
I hope & pray one day I am through this. And can go on to do more amazing things and make you all proud.
Update June 2025: I need an 8-9 hour surgery. There is no way around it. That's how serious it is. I TRULLLLY Appreciate everyone who is donating. This will be a lot. Mentally, Physically & Financially! Seeing as insurance likely will not cover it.!! I will be meeting with 1 more doctor. But likely getting surgery in CA (out of network) with a top expert, who will be doing a major reconstructive surgery. They've done major accidents, nuerofacial surgery. They've done lots of charity work too. And the compassionate soul in me sees the heart in that - Traveling around doing hard things to drastically help peoples lives for free - you gotta actually care about people.
Not only will the surgery cost, but the travel, the $ for Healing, so DO DAMAGE & DONATE!
Health Update (I made need surgery) + more treatment
My Fight with SSDI - ENS Court Case
My Experience w/ “Empty Nose Syndrome” & Healthcare system
Another Video Describing How Treatment Is:
If I don't fix this problem I may need more surgery. Health Update (I made need surgery) + more treatment
Another Video Describing How Treatment Is:
https://youtu.be/HXpLA3TWO74
UPDATE December 2024: $400 recently was spent for consulting with 2 new doctors!! Because Dr. Jang (who costed $600!!) the specialist in Korea who would have been ideal, told me my case was too tricky, said he'd need to examine me in person, but then refused to set that up?? He diagnosed many structural issues based on my CT scan & MRI But seemed too busy or complacent. It's extremely frustrating, disheartening so I am consulting with 2 new doctors. Before I give up hope completely. It was a Doctor that got me sick in this position & it seems like No Doctor wants to help, which is there job
If you know me you know that for the last 6 years I've been suffering with a rare neurological breathing condition called ENS that has took a huge tole on my LIFE & HEALTH.
the little that i am still able to do I fight for my life. & try to keep going.
99% of the day I cannot breathe unless I have some type of device.
To ENS Sufferers they often feel like they are drowning, suffocating or have a really bad cold 24/7.
The Symptons:
anxiety, depression, difficulty breathing, risk of suicide, respiratory infections, chronic infections, pain & facial nerve pain, TMJ, trouble swallowing or speaking, dry sinuses/throat, sleep difficulties, lack in quality of life
My Fight with SSDI – ENS Court Case
My Experience w/ “Empty Nose Syndrome” & Healthcare system
Another Video Describing How Treatment Is:
Health Update (I made need surgery) + more treatment
I have gotten several treatments with an ENS specialist but as you know I am looking for a permanent cure for these issues. This may require a very scary in depth surgery to fix damaged tissue & implants.
I've been to 217 doctors over the course of this time and have spent thousands on the upkeep of my health.
I no longer want to be a slave to this.
The Fight for Breath may require Surgery & Treatment
and a long journey of healing.
Organizer
