Lewis Berry's Heart Surgery Journey

Hi I’m Bec Adams, better known as Aunty Becca to Lewis Berry

I’m hoping to raise funds to assist my nephew Lewis, his mum Elyssa and little brother Myles as Lewis starts his long road of open-heart surgeries to keep his little ticker functioning.

Lewis is 5 years old and has just stared kindy this year! He is a wild little dude who loves to sing, dance, play soccer, go fishing and ride his motorbike.

Unfortunately, Lewis has recently been diagnosed with a ventricular septal defect and severe aortic valve stenosis.

In November 2024 Lewis underwent catheter surgery with the intention to inflate a small balloon in his aorta to widen it, but when they went in they learnt that the stenosis was much more severe than anticipated with his aortic arch narrowing in three places and the aortic valve leaflets had thickened dramatically, meaning the balloon procedure would not work.

Lewis, Elyssa and Myles met with his new surgeon is January 2025 and he will under-go his first of many open-heart surgeries this coming April.

Lewis' heart is currently working way too hard to pump blood, which is also thickening the left ventricle and weakening his heart.

Multiple open-heart surgeries paired with close monitoring will hopefully keep his heart working well enough until he is able to receive complete valve transplants.

The road ahead is very uncertain and will have to be played by ear.

Unfortunately, when the world stops for our babies to have surgeries, the bills continue to roll in hard and fast regardless.

Any donations to help ease the financial stress for Elyssa as they start the long journey of Lewis’ heart surgeries will be immensely appreciated.

Thank you,

Bec