Celebrate Joey’s 15th Birthday & Rare Disease Day by Supporting Galactosemia ‍♂️

This year, we’re celebrating Joey’s 15th birthday & Rare Disease Day in a way that reflects who he is — strong, determined, compassionate, and one of a kind. Joey was diagnosed with Classic Galactosemia, a rare genetic metabolic disorder that affects how the body processes galactose (a sugar found in dairy and many foods). From infancy, Joey has faced challenges that most people never see — strict lifelong dietary management, medical monitoring, neurological impact and the ongoing uncertainties that come with a rare disease. Yet he continues to show resilience.

Galactosemia is rare, but the impact on families is life-long. There is currently no cure. Research funding, awareness, and community support are critical to improving outcomes and advancing treatments.

By donating, you are:

✔ Supporting rare disease

✔ Raising awareness for Galactosemia

✔ Helping families who face similar challenges

✔ Honoring Joey’s incredible 15-year journey 

Joey chooses purpose. He chooses awareness. He chooses to make a difference. We hope you choose to do the same along side him! Thank you for celebrating this birthday with us and for standing with the rare disease community.

Together, we can turn 15 into something powerful.