Let’s save baby Siyona

Hi I am Sultan Yakha fundraising for a 13 month old baby named Siyona Shrestha, who is suffering from a rare disease called spinal Muscular Atrophy (SMA) Type 1, on 17 May 20. It is a progressive neuromuscular disease which gradually weakens the muscles, limbs and respiratory system. Without a proper and  timely treatment, She may not make it past 2  years of age. Siyona needs a gene therapy drug called “Zolgensma” which builds her defective gene and strengthens her weak muscles. The financial situation of her parents is hindering  the treatment process at the moment as  the  Zolgensma itself costs around $2.1 Million, and an additional expenses may lead to $2.3  Million. It is such a  huge amount of money but  I  believe  that our collective efforts can help this little baby girl embrace this beautiful life. Therefore I look forward to all the generous  people  for any kind  of  help and  support to make this fund raising program successful. 

‘Giving is not just about making donation. It is  about making a difference’ so let’s all be part   of it to make a difference in Siyona’s life by giving whatever you can.