Liam Turner was developing as a typical boy until he was four and a half years old. Then, over the course of a summer, he went from an adorable, smart, funny, sweet, and very energetic little boy to one who could hardly communicate.
Erin and Garry, Liam's parents, went from one doctor to the next. They saw every specialist they could find. After they exhausted all the resources at Boston's top hospitals, they traveled to Florida, Michigan and California seeking a diagnosis and treatment. When traditional Western medicine failed them, they sought out and tried creditable Eastern alternatives. To say the Turners have left no stone unturned would be an understatement.
His symptoms, lost speech, emotional difficulties, behavior, allergies to most foods, and digestion issues led many to consider Liam to be autistic, but each of the doctors they met said they had never seen a case like Liam's. The way in which the disease presented itself, and the many unique components of his symptoms, did not line up with what they knew about autism.
Erin and Garry have been searching for more than six years. This past fall, they found one of the few PANS / PANDAS specialists in the nation. Located in Ramsey, New Jersey, Dr. Trifiletti quickly diagnosed Liam with having PANS, (pediatric acute onset neuropsychiatric syndrome), which, in short, brought on autoimmune encephalitis, or inflammation of the brain.
For the first time in years, there is a proper diagnosis, a treatment, and potential healing in sight.
Liam will begin IVIG treatment within the coming month (IVIG / intravenous Immunoglobulin is used to treat various autoimmune diseases). The treatment is meant to boost his immune system so he can fight the disease and rid his body of the bacteria and virus that is causing the inflammation. The downside of the treatment is that it costs many thousands of dollars each month and Liam may need to be treated for months or even years.
And so, we are inviting friends and family to be part of Liam’s cure. Thank you so much for giving hope and the potential for health to our very special little boy.
- Janet Russell
- Ilicia Balaban
- Howard, Dale & Mirium Spaner
- Dena Schulman-Green
Organizer and beneficiary
Jackie Herskovitz Russell