
Let’s give Lynne Connor the life she deserves
Lynne was diagnosed with type 1 diabetes a day before her 13th birthday she had to learn how to test her blood sugars and inject insulin. Ar the age of 14 she had appendicitis and had to get her appendix removed. She had numerous admissions to hospital throughout her teenage years. When she was 22 she was in a hit and run accident she had to get 4 operations on her left leg and undergo months of physiotherapy to learn to walk again.
Lynne has never been the same since the hit and run. At the age of 24 she started vomiting continuously and it would go on for weeks at a time. She was physically unable to do anything she would lie in 1 position, any movement would make the vomiting worse. She was in and out of hospital for months. The doctors were saying it’s gastroenteritis.
This went on for about a year and a half when eventually she was diagnosed with gastrparesis. Gastroparesis is a stomach condition were the nerves are damaged and it doesn’t digest food properly or stops working completely. It is a deliberating condition. It causes severe nausea and vomiting for weeks on end and malnutrition and dehydration. There is no cure. Lynne was in and out of hospital. She had Botox in her stomach to try and give her some relief but that eventually failed. Then in 2008 she was told about a new device that might help with her gastroparesis it was a gastric pacemaker to send waves to her stomach to try and help digest food. Lynne has to then apply for funding to the PCT eventually it was approved and Lynne had the operation.
It did help for a while then she received more bad news about her health, her kidneys were failing.
Within months she was on dialysis 4 x a week for 4 hours at a time. Lynne was on dialysis for 3 1/2 years. She spent most of this time in hospital constantly feeling and being sick, tired, and exhausted.
In January 2012 Lynne received a kidney transplant off her mum.
She was well for a couple of years and then the vomiting started again. She had a peg-j tube put in her bowel so she could take her medications and her kidney transplant medications so kidney wouldn’t reject. She would put them into the tube in her stomach and they would go to her bowel so she wouldn’t vomit them up.
Since then Lynne has been in and out of hospital with her gastroparesis. Every time she’s been in hospital she has to get cannulas so she can be given IV fluids, anti sickness and other medication through her veins. Because her veins have been used that much.
In December 2016 Lynne went for tests to see if she was going through the change when her doctor rang her to tell her the news that she was pregnant! She was 12 weeks pregnant! She couldn’t believe it as she never thought she’d be able to have kids of her own. She was y fee the hospital and doctors give her the option to keep going with the pregnancy or terminate as could have ended in fatalities for her and her baby. But Lynne took the decision to keep going with the pregnancy as she wanted a baby so much. She had to be monitored very closely was at the hospital a few times a week. At 28 weeks she was told she had pre eclampsia and would have to have her baby delivered by Caesarian the next day. Ruben was born on 22.4.17 weighing 2 11 1/2 ounces. He had to stay in the woman’s hospital neonatal unit for 10 weeks. When he was able to take milk, breathe by himself and put on weight he was allowed home.
Then Lynnes health deteriorated again her gastric pacemaker ran out and needed replacing she had to apply for funding again. She was in the royal Liverpool hospital for 5 months constantly vomiting getting fed my tpn through her veins. Eventually she got the funding and was transferred to aintree hospital to have the new pacemaker surgically implanted. After this time Lynne’s Health has continued to deteriorate her kidneys are falling she is waiting for another transplant from her brother. Her gastroparesis is getting worse is iv access is getting worse. She has one line in her chest called a Hickman line that is the only way doctors can get anything into her veins.
Lynne is the bravest, strongest most caring girl I know. She would do anything for anyone,
gorgeous inside & out. She has such a positive outlook on life, never moans. Lynne is the
most amazing mum to her gorgeous little miracle boy Ruben. Whenever she is having a good
day we’re she is not ill she takes him every-
where. The heartbreaking thing is she seems To be having less & less good days & more bad.This can’t go on, we need to help her raise some funds for her to have life saving treatment
and give her a better quality of life. Ruben
needs his mum strong everyday. No one
deserves it more. Please let’s all help to give
them the life they deserve a happy & healthy
one then see her be able to take her little boy
to Disneyland.
Lynne’s mum is her absolute rock always therefor Lynne & Ruben. No mum should have to watch their daughter suffer for over 20 years likeshe has. Please let’s all do what we can to helpLynne.
Thank you so much
from all of Lynne’s best friends
we will also be organising some fundraising
events.
Since setting up this page unfortunately Lynne has had more bad news please read below in Lynne’s words:
But had some bad news my pacemaker has ran out of battery and you can’t replace battery it needs a whole new pacemaker that’s why I’ve been so sick lately and they are not funding them anymore and the only place you can get them done is private Nuffield health in Leeds I’ve got consultation on 5th June
Honestly I can’t believe it I’ve only had this one for 4 years the last one lasted 8 years. You are all amazing so kind and thoughtful ❤️I’m so blessed to have you all in my life ❤️ it’s £20 000 for pacemaker, operation and aftercare my mums going to speak to my family to see if they can give some money towards it xxxx
This should not be happening it’s heartbreaking never seen anyone go through so much. Really appreciate everyone who has donated so far thank you so much.
Just a further update - Lynne has recently just had an operation on her throat to enable her to eat & drink as she has been tube fed. She is currently awaiting further operations for another kidney transplant & new pacemaker for her stomach. The pacemaker will need replacing every 8 years which she will have to pay for privately as the previous 2 were funded but she has been refused funding for anymore.
This is heartbreaking what she is going through spending months at a time suffering & away from her family & 4 year old son Ruben
5 of us (Lynne’s close friends) will be setting off @ 5am to climb Snowden on Saturday 4th September. We are all mums who are pushing ourselves out of our comfort zones to do our bit to raise funds for our lovely friend…we would be very grateful if everyone could just even spare a £1 towards our fundraiser. Thanks so much Linzi, Christine, Michelle, Nicky & Yvonne xxx
Please everyone can you share her story. Thanks so much xxx