Let’s get our EczemaWarrior Levi to Avène
Avène Hydrotherapy Centre
Holly’s Song - A Current Affair AU
Firstly, thank you to my friend and colleague Marns for showing me Holly’s story and encouraging us to reach out.
Our son Levi’s eczema story is pretty much the same as Holly’s in the link - since 8 months old he’s had to endure itching, bleeding, stinging, creams, medication, infection, more cream, bandages and wet wraps, bleach baths, steroids neat and compounds and doctors visits, the stinging and crying (all of us!) We don’t have the video footage like Holly - those that know him will know his fight/flight is pretty strong so it take both of us to hold him still...He’s now 6 and starting school next week.
I didn’t know the Avène Treatment Centre existed until now, so we need your help to get him there for an initial treatment. We’ll be saving everything we can to get him there. Allowing him to stop all the torture that as parents we have to inflict on him to ease the itch and stop the constant use of topical steroids that will have long term affects on his body (stunted growth, delayed puberty etc)
$15,000 will pay for a 3 week intensive hydrotherapy treatment in Avene (France) along with flights and accommodation for Levi and one Parent, the other parent will stay home with our 2 yo. Not ideal, and neither Scott or I want to be away from Maya for that long but to stop the itch that impacts our household daily it will be worth it.
Eczema permeates every part of Levi’s life (and he does it like a champ!!). He can’t play with play dough or slime as it stings his hands. Loves the beach but hates the stingy water. Never sleeps before 10pm due to the constant itch. Can’t concentrate for more than a few seconds without itching (spent 2 songs at his Kinder concert scratching his hand) Other kids ask him why he has cuts all over him and it was best for Day Care not to tell me who called him Clown Face... He can’t run around and get too hot and heaters mess with him too in winter.
His eczema is now photosensitive which means he’s a nearly 6 yo boy in Australia who has to stay out of the sun and keep covered but cool, it’s impossible.
The little guy is also Coeliac (GF diet has done nothing to ease his skin) is allergic to raw eggs and dust mites - which makes blanket forts off limits and we can’t have carpet or stuffed toys. On top of that he wears a hearing aid so let’s get ONE aspect of his life a little easier.
We’ve now found a place that could ease his pain and we’ll do anything to get him there. Every cent we can save we will but it will take us a year to get him there.
please help our little EczemaWarrior not have to fight anymore and just enjoy being a little boy.
Thank you for reading
Much love
Michelle, Scott, Levi and Maya
