Help Dylan Enjoy Life While He Can Still Walk

Hi, my name is Bethan and I'm Dylan's mum. He has just turned 10 and you can see how cheeky he is from his grin!

Dylan was diagnosed with Duchene Muscular Dystrophy on 3rd November 2023 after a summer of pain, abnormal walking and many falls.

Duchenne Muscular Dystrophy is a rare genetic disorder that causes progressive loss of muscle. It affects many parts of the body and results in deterioration of the smooth, skeletal, heart, and lung muscles. This, unfortunately, means he will lose the use of his legs permanently and due to the involvement of the heart and lungs is life limiting. Please see the link for more information Duchenne Muscular Dystrophy.

Dylan has to undergo medical investigations, treatments (medication, gene therapy and much more) and the sheer exhaustion involved in all of this. Due to his ever worsening abnormal walking and falls I do fear he'll be in a wheelchair sooner, this may be due to his very delayed diagnosis.

My family and I have been completely devastated by this and we need your help. I am a trainee nursing associate and money is more sparse than ever. We don't know when Dylan will need his forever wheels, and so I kindly ask for donations to go towards him travelling to wherever he wants, activity days of his choice and anything else he would like to do in between before his wheelchair days come. Donations will also be used to help with the never ending costs of appointments and travel needed to get to and from.

Help me to make memories for my boy and take him to places he's only ever dreamed of.

Thank you ❤️