This month Leo will be taking on a challenge where he will play 36 holes of golf in approximately 8 hours….teeing off at 4.30am and walking 14 miles! All to raise money for his cousin Freddie.

Freddie was born a healthy baby but in 2023 he was diagnosed with a degenerative condition called Infantile neuroaxonal dystrophy (INAD) this condition is 1 in a million with no known cure and a life expectancy of 5-10 years…

Freddie can’t sit up and has faced so many challenges already and recently he was fitted with a feeding tube. But there is hope! A clinical trial is ready to go but needs a lot of funding for it to be able to go ahead.

Leo wants to do whatever he can to raise money for this special cause and to try and get Freddie the funds he needs to be able to be a part of a trial that could potentially give him a chance of life.

When people come together magic happens…please help us be part of the magic to get Freddie to that clinical trial.

Please donate and share Freddie’s story…time is of the essence ✨