Lennon's Legacy: Finding Hope in the Battle against Batten

Our hearts are breaking as we watch our beloved friends, Hannah and Garrett, navigate the unimaginable journey of watching their little girl, Lennon, battle Infantile Batten Disease. This vibrant, precious little girl, who brings everybody joy, is now battling a cruel and progressive neurological disorder.

This heartbreaking news has shattered the lives of her family and friends.

Infantile Batten Disease is a condition that progressively destroys brain cells, leading to a decline in motor skills, speech, vision, swallowing and cognitive abilities. There is currently no cure for this disease, and the doctors informed us that Lennon has about 6 months before she loses all her functions.

Lennon's family is facing a heartbreaking reality: their daughter's time is limited. They are determined to make the most of every moment, ensuring that Lennon experiences as much joy and comfort as possible.

Let’s come together to surround Lenny and her family with love, support, and strength.

Thank you for your generosity.