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Help get Dylan to Disney

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Dylan has an incredibly rare genetic condition called Baller-Gerold, this caused him severe birth defects and life long problems including very short stature, Cleft pallete, micronathia and radial club affecting both hands. Dylan is also unable to eat orally and is fed via a peg in his tummy.

Dylan breathes through a tracheostomy and has a cleft pallete that can't be fixed without surgery. This year Dylan will be having the first of many complex surgeries. The upcoming surgery will be to make his jaw bigger, with the hope of being able to repair his pallete and remove the tracheostomy. (Fingers crossed).

We would like to give Dylan something to reward him for his strength and bravery over the last 5 years of his challenging life, we would also like to have something that he can look forward to during the next four months of surgery, examinations and recovery time.

We believe this will help Dylan cope with the difficult time ahead.

We are both full time carers for Dylan and although we are saving, cannot do this without your help !

This little man has been through more challenges in his short life than many do in their whole lives, and we beleive that he truley deserves something special.


Jill Kelly

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