On July 25th, almost 2 weeks after her first birthday, my daughter was diagnosed with Krabbe disease. I cannot put into words how it feels to hear that your child is dying. All I can say is that my faith in God is stronger than any diagnosis from any doctor. I believe in miracles!!! Although my daughter has lost some of her motor skills, she is still here and fighting. Please support Laylani and our family as we look for ways to treat her condition and prolong her life.
Thank you and God bless!!!