My Princess Warrior was diagnosed with Sturge Weber Syndrome with Epilepsy (seizures) at birth. She is the light of our life and a very sweet, loving and caring child! She has had to undergo multiple surgeries and laser skin treatments to address her symptoms from the syndrome. She has also experienced seizures which require significant medication management. She has undergone skin graft reconstruction. Intensive care along with  physical /occupational and speech therapy is required to address her developmental delays. These past years have been a struggle because I also have other children that I provide for. I can ONLY work jobs that accommodate her schedule and doctor’s appointments. Please support my daughter in her continued needs for specific medical treatments and specialized medical equipment which is very expensive. I appreciate your support! God Bless!