On September 7 she went to bed with a simple cold. The following day she woke up and was unable to move her right arm. At Children's Hospital in St Louis, she was diagnosed with a very serious and rare illness called Acute Flaccid Myelitis. This illness has only been known of for 6 years and this year the CDC reports only 22 kids have been diagnosed. She was moved to the Pediatric Intensive Care Unit (PICU). She continued to decline for several days and lost the use of her left arm from shoulder to elbow and her neck muscles are significantly weaker. She currently requires a breathing tube that has been in for 5 days.
Since this illness is so rare, there is no timeline for her hospital stay or recovery. She's been in the PICU for 8 days already and we are unsure how much longer she will be there. Either her dad or I is by her bedside 24 hours a day. We have taken off work but are still trying to keep our other kids' lives relatively normal. We will continue to incur expenses after she comes home, including physical and occupational therapy and possible adjustments to our van and her bedroom to adapt to any restrictions she will have. We have no guarantee if she will regain mobility in her arms and neck.
We would appreciate any help that you feel led to give.
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