Laura's Lyme & Mold Illness Fund

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Laura's Lyme & Mold Illness Fund

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Hello, 
  Thank you for taking the time to read my health story and for any help you can provide me.
 My name is Laura. I am a 37 year old stay at home mother of two beautiful,  daughters, aged 10 and 12.  
  I am married to my high school sweetheart Bryan.  We have been married for almost 18 years now.  
  My life has been one of resilance and independence. All leading to one day when it all changed in March 2015. 
  It all started, in the summer of 2014. I had a root canal that became infected with an absess and I delayed treatment knowing the costs involved to retreat a root canal as I had it retreated once before. I tried oil pulling and chaning my diet and gargling in hydrogen peroxide, etc etc. Nothing worked.  By the fall of 2014 I became chronically fatigued. Sleeping 10-12 hours a night and I was extremely tired all day long.  It was like I never could get enought sleep.  During that time, I also started developing heart palpitations that were really concerning me. So I decided that I needed to address the infected root canal and went to my dentist. She sent me to a endodontist who tried three times to treat and save my root canal and it was unsuccessful all three times.  The costs of these 3 procedures alone costs us almost $2000.  All the while, I was feeling more ill, and developing more and more heart palpiations.  Then on March 4, 2015 it all changed. I was trying to clean and dust my home.  I had just had a few cups of yerba mate (a highly caffinated drink) to give me a boost of energy to try and clean as I was so fatigued. All of a sudden, as I was cleaning, everything started to spin, I started sweating, shaking, electric jolts went through all my nerves and my heart was racing out of control. I immediately laid down and was shaking like tremors. I thought I was having a heart attack. I was taken to ER. 
  They ran EKG heart tests and gave my oxygen as my O2 levels werent stable. After several hours and blood work I was sent home with Ativan (for anxiety) told to try to calm down and breath and follow up with a heart doctor the next business day to evaluate further. This visit to the ER was over $2000.
  I went to the cardiologist the following busines day and they couldnt find anything majorly wrong with my heart. They put me on a heart montitor to wear at home.

  They said I didnt have a heart attack. I was just dealing with Sinus Tacycardia (ist) andI could take a low dose beta blocker if I would like. I declined at the time as I knew instictually somethine else much bigger was happening.
  For the next 4 months I suffered debilitating insomnia, and average of 30mins-2 hours a night  I had horrible shakes like tremors, sweats, heart racing, chest pains, vertigo, fatigue, electric jolts and more.  During that time I had two more trips to the ER and several trips to various doctors and 3 more cardiogists. We easily racked up another $ 5000 in debt just to the ER visits and amblulance costs. I have CT scans of my chest and more tests. They still couldnt find anything. I was given more anxiety medicine, more sleeping medicines, and nothing was helping.
  Eventually, my gut instinct told me "pull out that root canal" after reading this article about root canals by Dr Mercola. I was ready to get it out. Maybe I could start to heal. Maybe it was the infected root canal all along?! So I called my dentist and said get me a referal to a specialist to have my tooth removed. 
  In late June 2015 I wobbled in holding on to Bryan, praying the procedue wouldnt kill me. I told them to just numb me up good, as I was in no way strong enough or in a safe enough position to be put under for the procedure. 30 minutes later the tooth was out. Within a few weeks I started to notice I was feeling better. Not great, by any means, but better. I was sleeping a litte more and walking a little bit. (I was pretty much bed bound for the whole 4 months) 
  But as time passed, I realized this was not the key to my restored health. I still felt unwell and was still having heart problems and symptoms percisting. 
I wrote about my struggles on social media, and a local friend reached out to me and asked me "have you ever been tested for Lyme disease?" I was like WHAT?! There is no way I have Lyme disease. This is not lyme disease, what was she thinking. But I decided to listen to her story, as she was dx with Lyme, and sure enough we had a lot in common! I was shocked. So, I decided to make an appt in October 2015 wiht the only LLMD (lyme literate Medical Doctor) in our entire County. The same doctor my friend was going to. I was tested for lyme disease, thinking at the time it most likely was going to be negative and this was just a waste of time. After paying the $700 to get the test done (via Igenex, the only accurate Lyme disease test currently available at that time on the market) it came back positive! I was dx with chronic Lyme disease. I was so SHOCKED! 
After the initial shock wore off, I then found some solice because I felt, "wow, now I finally have an answer to all the things going wrong with me. Thats all Ive been praying for and I finally got an answer so now I can finally start to help my body heal"
  Dec 1 2015, I started the Cowden condensed lyme protocol that my LLMD used for his patients along with other supplements for Candida and hsupplements for support. None of these treatments were covered, becuase as of current, the US government doesnt recognize chronic lyme disease so insurance doesnt cover any treatments.
  I was paying at that time about $150-200 a month for the 3 primary medications and 3 detox support supplements.  
  After 3 months of struggling to build up to the full dose, in March 2016 I started to feel better.I was about 70-75% back to my old self. I was so suprised. I started to sleep better and was able to walk around and drive again. (I had previously been unable to drive or go almost anywhere) I still had some heart issues off and on and some other symptoms off and on but they were manageable.  Needless to say my family and I embraced life to the fullest. We got in our travel trailer and started to enjoy the (what seemed like) the return of my life. 
  We took several trips to the local beaches and a big trip up to Yosemite in June of 2016. 
  I counted my blessing everyday. I soaked in every moment. Cherishing and giving thanks.  I am so happy I did.
  Unfortunately, while in Yosemite, 7 months into my Lyme treatment, I ran out of my lyme medicines. I knew I could order more when we returned back from our trip, and I was doing well, so I didnt get too concerned.  I went on enjoing every blessed day there with my family. Sadly, shortly after returning back home from our Yosemite trip, I crashed...and this time very very badly. 

  It is Dec 2016, as I write this and I am still in a crashed state. I have tried the original protocol that got me back to 75% well and it didnt help at all, I tried antibiotics and they sent me to the ER as I couldnt tolerate them, and many more treatments and supplements since then. Like HBOT (hyperbaric therapy) which I couldnt handle and so much more...

  Since July 2016 when I crashed, I have gone through so much I cant even list it all.Here are some highlights:
*I have seen several Lyme literate doctors & cardiolgists
*I have had many many expensive tests done, almost all not covered by insurance 
* I have been to the ER again twice
*My symptoms have all returned and much worse. Heart palipations (now on beta blocker), exteme vertigo (cant drive most days), sweats, shakes, extreme insomnia, developed Autonomic disorder called POTS (postural orthostatic tachycardia) when I stand my heart goes super fast and bp drops I feel like I will pass out,  
have landed in wheelchair for weeks and using a walker for many months. Ive been bed bound for a majority of the time and I have  been deemed disabled. I pray everyday its only temporary.
  I have had a few better days recently, here and there where I can walk alittle  or drive myself short distances,  but they are not steady holding. I have many ups and downs. Every day is unknown.  I count my blessings by the minute.
  I have found out this year, with all the extensive testing that I have much much more going on!
I have been diagnosed with:
*Lyme-relapsing fever
*Rocky Mountain Spotted Fever
*Lyme co-infections:Babesia, Bartonella, Mycoplasma
*Epstien Barr Virus
*Candida
*Mold toxicity from black mold Stachybotrys
and aspergilius found in our home via extensive testing. (This was from a poorly designed jacuzzi bath tub in our home. Tons of mold was been fed under the tub and grew up the walls. Half the bathroom had to be remediated and reconstructed. All carpets had to be removed and replaced. We had to dispose of almost ALL of our belongings that were not metal, wood or hard surfaced.)
*MCAD (Mast Cell Activation Disorde r) Causing allergies to so many things
*Autonomic disorder - POTS 
*CIRS what is cirs? 
  All  the lyme doctors I see do not take insurance due to the complexity of the disease and the time it takes to work with patients like me. 
  Currently, due to the extent of my conditions, and my current state of health,  I am seeking out two top Lyme doctors. One is a Lyme cardiolgist located in Arizona. And the other is a leading Lyme clinic on the westcoast.

Unfortunately, we are in a lot of debt, and with only one income, I am turning to my friends, family and gofundme for addtional support.

At this time we have accrued $28000 in debt due to the dieseases I have been challenged with. 
  I have consulted with a top lyme and mold doctor, (who only consults and doesnt take any new patients) and was told with the complexity of my situation I likely have 2-3 years of healing ahead.

With that said, I forsee aprox. $15000 average each year of treatments and doctors visits ahead. Unfortunately we do not have much more monely left on our last credit card and do not think we will qulaify for anymore.

I really do not want to give up hope now. Thats why I am reaching out. If you can help me in any way by donating $1 or more it would be so very appreciated and would go toward:
*My on going doctor visits (average $300-600 and hour for these doctors)
*My on going treatments (ozone therapy is $200 each time and are usually done at least once a week, as well as other treatments)
*My monthly supplements (old pic, I take about 3x this now) Which cost me $300-500 a month
*And Our accrued medical bills and mold debt of $26000

 Thank you from the bottom of my inflammed heart for taking the time to read about my jouney and for any support you can offer. Every single dollar will be used toward my continuing care and fight for my life. There are many days I want to give up. If I didnt have these two beautiul daughters I know in my darkest hours I already would have. Thank you for giving me hope. Thank you so much for being part of my journey. I will post updates here and on social media as I can.
  (If you cannot support me financial, I can always use physical support as well, if your local; with cleaning, or making meals, or shopping or driving me to appts.)


 
For more info about lyme disease please visit:
https://www.lymedisease.org/lyme-basics/lyme-disease/chronic-lyme/
Chronic Lyme disease You tube 



Bless you all. 

Thank you for the continued prayers for my health.


Humbly and with much gratitude,

Laura

Organizer

Laura Wilson
Organizer
Oak View, CA
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