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Laura Reeves medical bills and treatment

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Hello everyone! This is honestly so hard for me to step out and ask for help. One of us being a fire fighter and the other in ministry, it can make things a little challenging when thousands of dollars start to accumulate in medical bills.

Laura was diagnosed with chiari malformation May 4, 2021 after almost a year of fighting horrendous headaches and dizziness. They wanted to keep her and do surgery that day because of how extreme her chiari and blockage was but we let her have a few more days of school and she had her first decompression surgery in Tulsa on May 11, 2021.

Laura seemed to do really well until she was diagnosed with COVID and due to her immune system still trying to recover from brain surgery it turned to pneumonia quickly, and was admitted to Saint Francis children’s for a week. After COVID she had many lingering struggles and the headaches started to come back. We saw our Tulsa surgeon in December and he wanted to do more surgery and be more aggressive but we were not comfortable with this. That surgeon was let go from the St Francis shortly after this recommendation.

We contacted a few specialist across the country and settled on Dr Swift at Dallas Childrens. He got her imaging and called within the hour of receiving the images and asked us to come to Dallas the next day, this was urgent.

Laura had her second decompression surgery on February 16,2022 with the complete removal of her cerebellum tonsils.

We have had lots of improvement but we are still struggling with headaches and horrendous back pain. She has a lot of remaining syrinx up and down her spinal cord which are mini tumors that blockchain the CSF fluid flow. Laura started physical therapy 2-3 times a week in November to help with the back pain and is still needing this now.

We made an insurance switch the first of the year to reduce our massive amount of put of pocket but this has been a huge mistake. March 15th she had already used all of her PT visits up and we have over $2,000 with of PT already that our insurance will not cover.

We head back to see Dr Swift to discuss our next step and treatment. We have learned of a procedure in Spain that frees up the CSF flow in the spinal cord, but this would be 100% out of pocket and with our lingering 6,000+ medical debt from the surgeries plus the PT, and the new 3 scans in Dallas tomorrow this is not within our reach currently.

We humbly ask for any help and are so grateful. Please PRAY for our girl and healing of her body. This has limited her so much and now taking away the things she loves most like cheering for her favorite football team.
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    Organizer

    Erika Furman Reeves
    Organizer
    Tulsa, OK

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