Support Nicholas with Adrenoleukodystrophy

After the birth of our second son, our world was turned upside down when he diagnosed on Florida's Newborn Screening Program with Adrenoleukodystrophy (ALD), a rare and life-threatening genetic condition. This diagnosis came as a shock and has since transformed our lives. You can read more about the condition here!

As parents, our primary concern is providing our son with the best possible care. Unfortunately, the standard of care he requires is not readily available in our home state of Florida, where a true specialist is needed for this condition. We need to travel out-of-state twice a year from Florida to Massachusetts to access care from our chosen doctor out of only a handful of specialists in the USA.

The reality of our situation is daunting. The cost of his standard of care, travel expenses, and the ongoing care required for our son is overwhelming. We are doing everything possible to ensure he receives the best and most appropriate care.

This is why we are turning to the kindness and generosity of this community. Your support can help us cover the medical, travel, and other related costs essential for our son's care.

Every donation, no matter how small, makes a significant difference and brings us closer to ensuring our son has access to the medical treatments he desperately needs. We also hope that by sharing our story, we can raise awareness about ALD and the challenges families like ours face.

We are incredibly grateful for any support you can provide. Your kindness and generosity mean the world to us during this difficult time. Please help us give our son the chance to fight this condition and live the fullest life possible.

Thank you from the bottom of our hearts.

The Larrea Family