Laras life ❤️

My name is Lara McHugh I am almost 3 years old❤️ I have a rare genetic disease called spinal muscular atrophy type 1 it is the number one killer of infants under the age of 2. I was diagnosed with sma type 1 when I was 6 weeks old thankfully I got access to the miracle drug spinraza which saved my life. 
SMA does not effect my brain and I am just like any other child my age the drug has given the ability to reach many milestones and I am finally learning to drive a powerchair in the crc. 
PLEASE help make my house accessible so I can live my best life ❤️ I really want to have space so I can get my own powerchair and explore the world I live in  

Donations (0)

  • Jennifer McCullagh  
    • €50 
    • 6 hrs
  • Bryan Thorpe 
    • €300 
    • 8 hrs
  • Geraldine Rooney  
    • €100 
    • 13 hrs
  • Nellie Lannen 
    • €100 
    • 19 hrs
  • Thomas Jinks  
    • €20 
    • 1 d

Fundraising team (3) 

Celine Power 
Raised €2,850 from 32 donations
Dublin, Ireland
Niall Mchugh 

Suzanne Dolan 
Team member
Raised €355 from 8 donations
This team raised €11,480 from 237 other donations.
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