
Lakyn’s Medical Costs
Donation protected
Hi, my name is Ashlynn. A year ago Ryan & I received our little miracle, Lakyn. She is the light of our lives and the most beautiful little girl. We aren’t typically the people to ask for this kind of thing but God has a way of humbling you when it comes to your babies.
We haven’t shared much about her medical information with many people other than immediate family but we are now needing help for costs that insurance won’t cover.
When Lakyn was around 3 months old I had a feeling that something was just off, I couldn’t really explain it other than something just didn’t seem right. So, after switching doctors a few times we ended up at Shands in Gainesville and they have been magnificent. Lakyn has been diagnosed with a Genetic Brain Abnormality, Seizures, Torticollus, Atrial Septal Defect in her heart, Microcephaly, Global Developmental Delays, Vision Impairment, Placiogephaly, her head size is in the less than 1%, and Muscle Spasticity. She has had an MRI on her brain, surgery to correct lip and tongue tie, a hospital stay for the seizure, multiple rounds of blood work, patching of her eye, has been fitted for ankle braces, a Benik Suit, will be getting an assisted standing device soon, and is currently undergoing Genetic Testing with Ryan and I in an attempt to find a diagnosis for her condition. She is currently under the care of Neurology, Genetics, Opthemology, ENT, Ortho, Cardiology, and her incredible Pediatrician, as well as currently going to physical therapy, occupational therapy, and speech therapy twice a week.
We do know it’s genetic and it’s not something that medication can fix. Her treatment consists of years of Physical, Occupational, and Speech Therapy and even with that we are at a “wait and see” point with her development. Right now our biggest concern is her being able to walk, she puts little to no pressure on her legs with little use of her stomach muscles. Because of this, she is only rolling in one direction right now.
Because of the way the brain develops and the age that she is now, it’s vital that we push as much therapy as hard as we can to help her brain make the connections to be able to do these things. They call this brain plasticity and it works by repeating therapy over and over again multiple times a day to help the brain form connections to the legs or other targeted body part.
We were able to get Lakyn into an Intensive Physical Therapy Program that specializes in conditions like hers and babies. The therapy lasts 3 weeks and she will attend multiple times a day to help her brain make these connections. The program is not covered under insurance and there will be traveling costs, this is what we are asking for help with.
Any help that you all can provide would be greatly appreciated in this. We are trying to do everything we can to fight for our baby girl. We appreciate you all taking the time to read and we are happy to answer any questions that anyone may have. Even if you are unable to donate, please share, and as always say an extra prayer for our girl <3
-Ashlynn
Organizer
Ashlynn Thompson
Organizer
Ocala, FL