Smith-Magenis syndrome is a developmental disorder that affects many aspects of her life. It is a rare condition that affects an estimated 1 in 25,000 individuals and characteristics may include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, and behavioral problems.
Disrupted sleep patterns are also characteristic of Smith-Magenis syndrome, typically beginning early in life. Those affected have trouble falling asleep and awaken frequently each night and may be very sleepy and irritable during the day.
While this sweet little girl can be laughing and playing and having a wonderful day most of the time, she frequently has days, fed by sleepless nights, with temper tantrums, aggression, anxiety, impulsiveness, and difficulty paying attention. Jenna’s not had a restful night's sleep in her 9 young years.
Jenna's family has looked into many options to keep her safe and comfortable at night and found The Safety Sleeper. The Safety Sleeper has helped families all over the world with children or adults suffering from a variety of mental and physical challenges that puts them at risk for unsafe situations at night. It keeps them comfortable and most of all safe. Finally an option!Except the price is out of reach for her family.
I've known Jenna her whole life, her mom has been my best friend since we were kids. I want to band together with all of my friends near and far and see if we can raise the money to buy Jenna this bed. It will make a world of difference for this family, and most of all for Jenna. If you would like to donate, small or large, every dollar would be greatly appreciated towards our goal.
- Lenny Beganovic
- Brad Brown
- Shantel and Justin Csada
- Kent Bonertz
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