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Kylie's Medical Miracle

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My daughter Kylie has been officially diagonosed with Pediatric  Autoimmune Neuropsychiatric Disorders Associated with Streptococcal (P.A.N.D.A.S). Basically, it is an autoimmune disorder caused from the strep virus that attacks the brain & causes physical & psychological dibilitating symptoms.   Kylie used to be a happy, fun-loving little girl.  One day she woke up & this disorder had taken her away.  At age 5 she had strep 6 times & I began to notice symptoms of severe depression, anxiety & OCD. At that point she went in-patient at Cook Children's for medication management & intense therapy.  From that point, she would make small progress but they were short lived.  The past 3 years have been so hard for her. There is continued regression with her health,  academics & social interactions. We have seen numerous doctors to which only seem to be able to treat symptoms & not the root cause.  Recently, P.A.N.D.A.S. was brought to my attn as something I should look into.  There is limited options for the proper treatment here in Tx.  After much research, I found the Dr. Beth Latimer in Washington D.C. who specializes in treating this disorder.  We feel this is our best chance at getting our daughter back.   I have made her an appointment ThursdayNovember 4th. The doctors do not accept insurance (& that seems to be the case everywhere).
We are asking for help for the treatment cost & expenses involved with traveling to get her the help she needs.

For more information on P.A.N.D.A.S:
www.pandasnetwork.org
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    Organizer

    Julie Kay Thurman
    Organizer
    Burleson, TX

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