Without life-prolonging interventions, DILV is fatal, but with intervention, children with DILV can lead normal lives if the condition is monitored. Kurt will undergo many more surgeries as he and his heart grow. When he is between 3-5 years old he will have another surgery and eventually as an adult will need an entire heart transplant.
Kurt’s mommy and daddy will be spending all their time with him at Strong Memorial hospital in Rochester, NY beginning next week, and have no idea how long they will be away from their home and Kurt’s two other siblings Avery and Kennedy. I wanted to create this GoFundMe to help them survive the overwhelming travel, lodging and logistics costs associated with Kurt’s surgery and the inability to work during this time. Kurt’s parents Sasha and Mike would never ask anyone for help, so I am doing it for them. Please help support my family and most importantly my nephew Kurt and his long journey ahead.
- Jaredw Weinberger
- Jared Weinberger
- Terri Gondek
- Joni Kenny
- Amanda Scrivener
Organizer and beneficiary
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