Kulia's Fight Against CMV
Donation protected
Kulia was permanent disabled by cytomegalovirus (CMV).
She is 18 months old and will struggle to get through everyday in life. She suffers from a number of disabilites including cerebral palsy, epilepsy, hearing loss, sever bran damage , eating issues. With proper therapies, hearing devices, orthopedic splints, braces, mobility aides, technological advances not covers by insurance Kulia will learn to thrive. We will do whatever we can to help her along the way.
We have turned out anger and frustration into positive.
&&& ALSO, With the help of Utah (who passed a CMV bill in 2013) presented a bill to educate and treat women and newborns affected by CMV to lessen the occurance of CMV. Please help in supporting HB 782.
We are on a mission to raise awareness and educate pregnant women, doctors and everyone in general.
Thank you for your continuing support and love. We are forever thankful.
She is 18 months old and will struggle to get through everyday in life. She suffers from a number of disabilites including cerebral palsy, epilepsy, hearing loss, sever bran damage , eating issues. With proper therapies, hearing devices, orthopedic splints, braces, mobility aides, technological advances not covers by insurance Kulia will learn to thrive. We will do whatever we can to help her along the way.
We have turned out anger and frustration into positive.
&&& ALSO, With the help of Utah (who passed a CMV bill in 2013) presented a bill to educate and treat women and newborns affected by CMV to lessen the occurance of CMV. Please help in supporting HB 782.
We are on a mission to raise awareness and educate pregnant women, doctors and everyone in general.
Thank you for your continuing support and love. We are forever thankful.
Organizer
Krystyn Aguinaldo
Organizer
Kahului, HI