Please help! Eden Faber's Battle with Cancer

HAPPY BIRTHDAY EDEN! 
Eden Faber was born on 12/17/2019. This beautiful girl was diagnosed with stage III cancer. She just suffered through a major surgery to remove her kidney due to the malignant tumor of the kidney called Wilms' tumor which is a rare kidney cancer that primarily affects children ages 3 to 5 years old. Eden only 10 months when her Mom, Sarah found a problem. Things happen so fast, this family needs your help! Please PRAY for Eden and if you find it in your heart to please donate, this family needs your support on so many levels. 
When a child is this ill, Moms and Dads need to be there, this means no one is working, making payments can be very difficult, needless to say the medical bills will be enormous.
The Fabers also have two other young children that need care when Eden is hospitalized.
PLEASE donate any amount can help.

Here is a rundown of dates, Below you will find Edens story. 

Sedated CT Reschedule surgery from 11/16 to 11/23 due to sever high blood pressure resulting in us moving from oncology floor to PICU Surgery for total left nephrectomy ( removal of kidney) Pathology review friday12/4 Found out positive lymph node in hilum of kinetic resulting in stage 3 diagnoses . Treatment plan for 6 rounds flank radiation at 10gray Chemo for 28weeks with 3 agents Saturday 12/5 back to cities for radiation mapping . Everything very fast because standard of care states these things (treatment) needs to start 14days of resection of tumor . We started at day 15 couldn’t happen any sooner with the time we were given Monday 12/7 surgery for port placement . Also first dose of chemo First dose of radio at ion was Tuesday 12/8. Radiation every day of the week Tuesday -Friday. Day two of radiation Eden projectile vomited three times in a row . She was day two of radiation plus one round of chemo




Eden's battle began here.........As her Mother Sarah Faber writes
Part 1: Where to start
I have put this post off because that means I have to own what’s going on and as a mother it’s extremely heartbreaking to think of the road ahead for our gentle, sweet little baby.
On November 13th I brought Eden into the walk in clinic because I had some concerns and I wanted a doctor to feel what I had been feeling and see Eden.
Eden had developed a rash a couple months ago. We believe it was a yeast rash and treated her with a topical cream which cleared it and supported her gut health with probiotic. Around this time I noticed her left side seemed hard. I thought maybe she was a little backed up from the probiotic.
I noticed the hard spot wasn’t going away and started to worry about something more serious like a blockage. I brought her in on a whim just to be sure she was ok. We couldn’t get in with her actual pediatrician so I schedule walk in because I wanted her seen that day .
I started to get nervous when the pediatrician had 2 other doctors come in to assess her followed by the word mass. We started with labs which came back normal ( in pediatric cancers this is not uncommon) then a stat read on an ultrasound. We were in the clinic for hours . It took 30 minutes after the ultrasound to get a call with the results which felt like forever. She told me Eden had a mass and I would be receiving a call shortly from an oncologist with children hospital Minneapolis.
I can’t begin to try and articulate the words to express how we were feeling. How could our world be changing so fast? You can’t do anything but pray this is some sort of mistake.
After speaking to oncology we were told Eden was thought to have something called neuroblastoma, cancer of the adrenal glad, and would need a series of events. One being a CT, likely followed by a biopsy in the next 3-5 days.
How could this be happening to our healthy, happy little baby.Part 2 : Answers from Children’s
When we arrived to children’s the hard work started. Eden had to be cathed for a sterile urine sample for a specific lab . She also needed to have an IV placed for blood work and a sedated CT to give us our next set of answers .
I can tell you there are many things a mothers heart should never have to experience and seeing the fear in your babies eyes as she looks back at you while being held down against her will to have a needle put in her delicate arm is one of them. Eden has had 4 IVs placed between Saturday- Monday.
After having labs she was brought down for a sedated CT. Handing my baby over and hearing her cry down the hall for us was gut wrenching. We waited in the waiting room where we were met by an oncologist who explained to us that Edens CT actually showed to not be related to her adrenal but rather her kidney. The diagnosis now went from neuroblastoma to Wilms tumor ( both childhood cancers). Her tumor is showing on the CT to be growing within the kidney at 4inches . Wilms tumor likes to spread to the lungs and has a characteristic trait of showing markers on both kidneys when due to genetics . Edens lungs and right kidney are untouched when reviewing the CT. We were told that Edens cancer “ for the lack of better words, is just BAD LUCK”
While explaining to us in the waiting room the oncologist was pulled to go exam Eden while still under sedation because her BP was unstable. This was when Eden first started showing issues with Blood pressure .
I would never wish bad luck on someone, let alone this kind of bad luck. My message for bad luck as a mother, you will be sorry. Because we come to kick ass!
November 18th, 2020
What we know :
Edens sedated CT was the first set of big answers for us. We not only found out the type of tumor she likely has but that she has been battling unsafe high blood pressure.
Wilms Tumor:
High Blood pressure is a side effect of her specific type of tumor, however Edens case is unique in itself because of how young she is and how high her blood pressure has been. Her blood pressure has been out of the “normal” or typical rage seen in Wilms. Her age also adds another aspect as Wilms tumor is typically found between the age group of 2-5years.
She has needed to be on medication to control the blood pressure. They have been trying to find the perfect combination to get it where it needs to be . One medication caused her to projectile vomit everything in her tummy after receiving it so they dc’d it. We had to move from the oncology floor to picu due to an IV medication she needs requiring very close monitoring to help her little heart from working so hard. They are working between fast acting and long acting blood pressure medication and the half life’s of them for surgery which has proven to be a bit tricky. We need her to be stable for surgery which is why we need her off of the nicardipine drip (fast acting)

November 23rd, 2020
Jesus I trust in you :
Dear lord we call apon you today, Bestow your ever empowering spirit apon this room for we know difficult days are guided by you as you are our strength when we are weak. Guide the surgeons, Anastasiaolgist , doctors and nurses along with everyone in that operating room. Bring peace , bring joy, and saturate that room with your Holy Spirit. We pray for Dr. Joe Lillegard that his mind will be clear and sharp. Full of wisdom followed by steady hands that operate from a heart of compassion. We ask that our guardian angels stay with Eden at the head of her bed to see and protect over her. We call apon mother Mary to help carry the weight of the cross we carry and lift feelings of anxiety and pain. God we pray for the victory that is the surgery and the health of this child going forward . Let her bring glory and honor to your holy name. Amen

 
This precious babe is out of surgery. She went to the O.R Monday 11/23/20 at 12:30 where we handed her over after praying for her and the team.
The surgeon said her surgery couldn’t have gone better. They had her set for a blood transfusion which she didn’t use due to minimal blood loss of 3cc’s. The doctor was able to fully remove her kidney containing the tumor which had not ruptured or leaked cells into her body . Eden also maintained her blood pressure and has not plummeted to low ranges as they expected to see .
During surgery they weighed the mass to make the determination for a port which is where she would receive her chemo. Her tumor was 389grams . The cut off was 550grams . Praise Jesus who we trust. She came out of surgery without a port and the doctors will wait for pathology results which will look at the specific histology of her tumor to determine if she will need chemo and a port placement. They are feeling optimistic about the results.
Please pray for favorable pathology
Through all of this there has been one thought that has stayed constant in my mind and it’s that this baby was given to US for a reason.
She was given to a family that will never stop advocating for her.
However this fight looks, She will always have family fighting for her.
With her we stand, we fight, we love, and we comfort . We will always be a constant for her.

Dec. 3rd,2020
The waiting continues...
As much as I didn’t want to make this post I knew I had to because there are many of you out there waiting to hear the next steps for our precious girl.
Today on the way to our appointment we got a call from the specialty clinic. They asked us to reschedule our appointment for tomorrow. The nurse, who works with Edens cancer specialist said that when they called the pathology lab today they were told all of the slides were not done. Her doctor wants to have complete results for our meeting. We want this too, but that call still hits a sensitive spot . What does that mean?
I’m reminding myself that her results are already, and have always been, in a higher powers hands. The pathologist is simply a middle person and what will be will be.
Pray for her

Dec 4th,2020
My perfect little girl
I hate yesterday. I hate it for Eden , I hate it for our family. I hate it for my other 2 children who are also sacrificing. When I think about yesterday I want to kick it in the face. I am, I’m mad at the world right now .
Defeated, lost, lonely, scared... empty
There was nothing perfect about yesterday. They told me my innocent and precious baby needs chemo . They told me she needs radiation. Eden's diagnosis is stage 3 Wilms, One of her lymph nodes outside of her kidney was positive which means her cancer has the ability, and did leave the tumor. It has spread outside of her kidney. They will give her 10gray flank radiation because of this She will lose her ovary on that side. In addition to that Due to the area of the kidney the entire part of her spine in that area will receive the radiation. Eden is so little she will need to be sedated for every round of radiation out of safety for her to keep her still. She will also need to be sedated again for her port procedure being they didn’t place one when they took her kidney . She will receive her chemo through the port which contains 3 drugs. There is absolutely nothing easy about this. I can’t think of how to describe the feelings other than a pit so deep in my stomach I could vomit.
WE have a long journey ahead of us. The standard of care in place says that all of this should happen within 14days of tumor resection. That means today we will be back to the cities for her to have sedated radiation mapping done. They need to look at her tiny body and figure out exactly how to administer her radiation in the precise way. This takes days for the software to consider angles, depths, and everything else that goes into it .
I could sit in my pain as a mother, I could keep trying to understand why. Why my little girl. Why my baby when I do so much to try to protect them , to try and take care of myself to give them the best life .
But that’s just it , Eden needs me . Now more than ever. And not this new, sad and lost version but the me many of you know. The person many of you talk about in all of the messages of strength and courage.
This is where I RISE UP. This is where I lean the hell into the loved ones standing behind our family and we fight. I know I’m meant to take All the hurt and anger, that overwhelming feeling to kick yesterday so far down into nonexistence and push back even harder. I WILL channel that negative energy into something positive. And that positive is fighting for Eden, supporting her and our family in every minute. We will get through this, not alone, but stronger & larger in the end.
CANCER, we will fight and we will kick your a**. In the end we will dust our hands off because you shouldn’t be a thing. You are something negative that has crept into our life and now we start the road to saying good bye